Tuesday, June 6, 2017

Robyn has been moved from the hospital's critical care unit to the paediatric ward. It's unknown how long she will remain in hospital. “There's no place for her to go,” Webster said. “They have abandoned us. I just hope Hands is using this time to come up with a crisis response for Robyn.”----Anne Larcade Someone reached out to me tonight about this about Robyn.She has been sent to Sick Kids as i understand in Toronto where she has been sedated for 2 weeks. She needs doctors who understand autism defence mode to help her. /No doubt her behaviours are autism overload or stress from pain, and she is just overloading and now fearful. Without the ability to express and medications her mid will ultimately become more confused in ability to neuro process. I offered to help any way i can or be a support. North Bay where she is from is 1 hour north from us and where my son was hospitalized for months. Another crisis and travesty....she needs a therapeutic setting and to gain back the love, hope, and supports so she can function. Very sad for people with autism who cant verbally communicate.

Children and youth with autism need help not hospitalization. The system is not able to support our children with disabilities and we have to educate the system. One mum in Ontario who has been educating the system for ages is Anne Larcade.  She has a FB page for her son Alexandre here:

https://www.facebook.com/For-the-Love-of-Alex-122919474853833/

For the Love of Alex


https://www.facebook.com/pg/For-the-Love-of-Alex-122919474853833/about/?ref=page_internal

STORY
Alexandre (Jules Marie Edouard) Larcade lives in the province of Ontario in Canada.
Since December 2015, Alex currently lives between a psych ward 1.25 hours from home and his home in Huntsville. Canada lacks supports for adults with autism who are in crisis.
Alex is an amazing young man who is an advocate for people with autism. He enjoys music, numbers, talking with people, swimming, and is compassionate, kind, a healer and learning Rekki.

Alex has a wonderful brother Emile, and loves his Personal Support Workers. Alex suffered PTDS in public school following an abduction and sexual abuse. He recently was mis understood after a med change and changes in life, and was 5 point restrained and endured chemical and mechanical restraints. His autism mis understood behaviours and doctors not trained to realize the terrible impact this has on visual thinkers.
This dialled back his autism, his ability to filter sensory, and created acute anxiety and recovery from PTSD again.

Until 2015 Alex has a very fulfilling life within his community, complete with friends and a network of supports.

Our goal is to illustrate his happiness and health as a beacon for others to learn about autism and for us to help us to access sufficient supports to bring Alex home.

We have created a special loving home for Alex and others to grow up and achieve independence with full time supports Casa Alex complete with animals and therapies on 1 acre in Muskoka.

Thanks for finding us or for your continued stay on Alex's page.

We remain committed to shining the light on autism and special needs rights; We will not allow force "attrition" tactics on us in an attempt to create an abandonment of Alex into inadequate, unethical, inappropriate and undignified options for living.

Bringing Alex home and the journey to end living in group homes, and be in a home of his own is the journey you see on this page. After16 years and 9 moves in group or foster care. Ontario now allows our funding stipend to be spend in a Person Centred Manner, and Alex choose to have his own home and share it, and eventually teach younger people with autism what is possible in life.

Alex inspires people and had a transformative impact on many he touches. He is not broken, he is different. Love has kept us believing as has the sheer will and determination of Alex to find his place in this world.

XOX Anne Alex Emile

**
Recently a FB friend told Anne Larcade of a case similar to that of Alexandre.  Such is the kindness of Anne that she immediately took on more work and offered her help. It takes a lot of energy to move out of the work of caring for your own family members to those in the community. I feel that Anne Larcade is such a decent human being that she cannot say no to those in need.


She's fabulous.

Here is the new case of inappropriate action with a youth with autism:

http://www.nugget.ca/2017/05/26/no-place-in-north-bay-for-severely-autistic-daughter

No place in North Bay for severely autistic daughter

Friday, May 26, 2017 12:35:14 EDT AM
Robyn Webster, 15, remains at North Bay Regional Health Centre following a violent incident last week during which the teen harmed herself. Robyn's mother, Michelle, is upset Hands: The Family Help Network has terminated Robyn's spot from the family home she has been living in since January. Hands said it hopes to meet with the family this week to discuss possible options. Submitted photo

  • Bookmark and Share
Change text size for the story
Print
Michelle Webster has reached a breaking point.
“The stress has put me over the edge. I'm broken. I'm done,” she said Thursday afternoon from the North Bay Regional Health Centre.
Webster has been fighting on behalf of her daughter, Robyn.
Robyn, 15, was admitted to the hospital just over two weeks ago after punching herself in the face until she was black and blue.
“She's hitting herself because she wants to tell you she's hurting,” Webster said.
“This was bad, but I can tell you it has been much worse. The bruising has been so bad, I didn't recognize her. She was black, blue, yellow, purple and green.”
Robyn is nonverbal autistic. She was diagnosed with autism at about 18 months and started to self-harm by the age of 11.
Robyn has inflicted countless bruises to her face, sustained a broken nose and caused blindness in one eye from the blunt force of her fists to her face.
In January, Robyn was moved into a family home operated by Hands: The Family Help Network that offers 24-hour care for children with complex needs.
Webster said the family spent a year contemplating the move and  was assured staff were aware of Robyn's needs.
“She loves it there,” Webster said.
But a week ago Webster was notified her daughter's spot at the family home was being terminated because Robyn requires a greater degree of care.
Jeffrey Hawkins, executive director of Hands, said he intends to meet with family by the end of the week to review options for Robyn.
“The family needs to be part of the discussion,” he said Thursday. “There are options for Robyn. However, they're not local, they're not in the North Bay community.”
Hawkins said Hands is trying to find them as close as possible, but it looks like they are 90 minutes to two hours away.
“We're working with our community partners. Unfortunately, there is nothing in this area for Robyn.
“This is a very unique circumstance,” he said.
Webster said as of Thursday afternoon she still had no idea what that means or what options Robyn has left.
“They (Hands) assured us they were up for this challenge. They told us they could deal with Robyn and they wouldn't leave her,” she said. “We told them when we were discussing the idea of moving Robyn into (the family home) that if they couldn't handle her needs to let us know, because it would be more harmful to move her in and out of facilities.”
Robyn has been moved from the hospital's critical care unit to the paediatric ward. It's unknown how long she will remain in hospital.
“There's no place for her to go,” Webster said. “They have abandoned us. I just hope Hands is using this time to come up with a crisis response for Robyn.”
Webster said it's becoming more difficult to see her daughter in the hospital.
“She uses her iPad and eye movements. She looks at me and starts to cry and says 'car.'
“I know she wants to get out of the hospital. There's no reason for Robyn to be living in the hospital.”
Webster said the hospital has been the family's saving grace and a champion for the family.
She said she's been assured Robyn will not be discharged with no place to go.
“I would have preferred to be working with Hands, but they're not picking up the telephone,” Webster said. “They're not talking to us.”


Hands: The Family Help Network evicts this teenager with autism and she is now in a hospital. They tell the family that she needs a higher level of care. So my question is why don't they upgrade their care plan and provide this higher level of care? Why is this severely autistic girl now in a hospital costing taxpayers more money than would be required to provide her an upgraded level of care at the place she was before she was evicted?
Surely there is some common sense left in the system in Ontario? Or is the entire nation unable to provide integrated care for children, youth and adults with disabilities?

Comments
Anne Larcade Someone reached out to me tonight about this about Robyn.She has been sent to Sick Kids as i understand in Toronto where she has been sedated for 2 weeks. She needs doctors who understand autism defence mode to help her. /No doubt her behaviours are autism overload or stress from pain, and she is just overloading and now fearful. Without the ability to express and medications her mid will ultimately become more confused in ability to neuro process. I offered to help any way i can or be a support. North Bay where she is from is 1 hour north from us and where my son was hospitalized for months. Another crisis and travesty....she needs a therapeutic setting and to gain back the love, hope, and supports so she can function. Very sad for people with autism who cant verbally communicate.
Reply
1
1 hr
Julie Ali Hi Anne, Can I put your comments on my blog? Can you let me know how this works out so I can blog about it?
Reply1 hr
Anne Larcade Julie Ali yes lets all educate and advocate -disrupting will create change for the better and together we help each other.
Reply
1
1 hr
Julie Ali Thank you Anne. Please keep me posted on the fate of this child. Thank you also to Belinda for posting this originally. Keep sharing folks.
Reply10 mins

No comments:

Post a Comment