Monday, June 5, 2017

--Alberta dementia strategy coming soon, health minister promises-------What's the dementia strategy of the GOA? There is no strategy for dementia just as there is no strategy for continuing care in Alberta. We are the strategy. Families of dementia patients need to find the appropriate help themselves.

The dementia strategy that we've been promised since the time of the PCs is still coming soon to Albertans.


What does this mean for families with dementia patients in their midst-who are struggling to take care of them? It means more of the same. We get to do the work and we're told this is just great for all concerned.


Letting families do all the work of taking care of dementia patients is great for the partners in care--AHS, Alberta Health, Covenant Health and the continuing care industry because they get to waffle for another decade or so and thereby save costs while still pretending to do something, anything.
If the GOA was really serious about the care of seniors or the coming Tsunami of dementia cases they would have got cracking ages ago and had infrastructure in place--as long term care facilities.

Instead the PCs and now the NDPCs are continuing with their program of placing complex care patients and dementia patients in supportive living placements which feel like inappropriate placements without the right number of qualified staff and without 24/7 RN presence.

It's a way to cheap out and it's worked for the politicians who talk a good talk about caring for seniors but then downgrade them from what used  to be long term care placements to now the typical SL4-dementia beds.

What's the dementia strategy of the GOA? There is no strategy for dementia just as there is no strategy for continuing care in Alberta. We are the strategy. Families of dementia patients need to find the appropriate help themselves. They need to track down a geriatric specialist, then set up a care plan and do it at home. While home care might be available why bother because in our experience it has been fragmented and unhelpful. It might be helpful if you can get a steady provider who the dementia patient accepts but this is unlikely.  The dementia patient needs stability and routine. The only way to dependably provide this is an all out effort by the spouse, the children and the extended family plus perhaps a care giver. There should be ongoing review by a physician and help from a paid person to do respite.

Don't bother to depend on the GOA. They don't know what they are doing and in any case, the NDP folks won't be around when the next iteration of the dementia strategy is announced to us. They began this strategy in October 2014 which was already too late. Now it is 2017. Good luck in getting this government to do a strategy folks when it didn't even bother to consider the aging population until 2014.

Meanwhile we get to have a whole pile of folks yap while families do the work of care:
http://www.ascha.com/PDF_files/rollout/2015/ADSAPWorkingGroupsMembers20150423.pdf

Alberta Dementia Strategy and Action Plan Working Groups Draft Terms of Reference
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 1
Appendix A
Alberta Dementia Strategy and Action Plan
Research and Innovation Working Group Membership List
Membership List
Membership (to be finalized with leads for each university identified)
University of Alberta:
Dr. Carole Estabrooks (Nursing)
Dr. Dorothy Forbes (Nursing)
Dr. Roger Dixon (Psychology)
Dr. Neil Drummond (Public Health)
Dr. Richard Camicioli (Medicine – Neurology)
Dr. Konrad Fassbender (Economics)
Dr. David Westaway (Molecular Biology)
Dr. Lily Liu (Rehabilitation Science & Occupational Therapy)
University of Calgary:
Dr. Marc Poulin (Physiology & Kinesiology)
Dr. Zahinoor Ismail (Medicine – Geriatric Psychiatry)
Dr. Eric Smith (Medicine – Neurology)
Dr. David Hogan (Medicine – Geriatrics)
Dr. Jayna Holroyd-Leduc (Medicine – Geriatrics)
University of Lethbridge:
Dr. Robert Sutherland (Psychology)
Dr. Shannon Spenceley (Nursing)
Alberta Health
Christie Lutsiak, Clinical Innovation and Policy
Ex-Officio
Pamela Valentine, Alberta Innovates Health Solutions
Grant McIntyre, Campus Alberta Neuroscience
Lynne Mansell, Senior Provincial Director, Seniors Health SCN
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 2
Appendix A
Alberta Dementia Strategy and Action Plan
Primary Health Care Working Group Membership List
Membership List
 Dr. Duncan Robertson, Co-Chair, Senior Medical Director- Seniors Health Strategic
Clinical Network, Alberta Health Services
 Dr. Gail Ewasechko, Co-Chair, Calgary West Central PCN
 Dr. Marie Patton, Co-Chair, Calgary Foothills PCN
 Barb Ferguson, Executive Director, Alzheimer Society of Calgary
 Shauna Prouten, Seniors Mental Health Unit Manager, Alberta Health Services
 Jamie Zittlau, Occupational Therapist, Alberta Health Services
 Kesa Shikaze, Vulnerable Populations Director, Addiction and Mental Health, Alberta
Health
 Dr. Jean Triscott, Director, Division of Care of the Elderly, Glenrose Rehabilitation
Office
 Dr. Karenn Chan, MD, University of Alberta
 Dr. Lesley Charles, Program Director, Division of Care of the Elderly, Grey Nuns
Community Hospital
 Dr. Nigel Flook, Alberta Health Services
 Dr. Karen Fruetel, Head, Division of Geriatric Medicine and Medical Leader, Seniors
Health, Alberta Health Services
 Christene Gordon, Director of Client Services and Programs, Alzheimer Society of
Alberta and Northwest Territories
 Mollie Cole, Manager, Seniors Health Strategic Clinical Network, Alberta Health
Services
 Dr. Tobias Gelber, Pincher Creek PCN, Alberta Health Services
 Dr. Paddy Quail, Alberta Health Services
 Jana Ambrogiano, Director Integrated Home Care, Calgary Zone
 AHS Primary Care Zone leaders (TBC)
 Karen Horsley, Specialized Geriatric Services Central Zone, Alberta Health Services
 Dr. Jennifer Stickney-Lee, Designated Supportive Living, Medical Lead Edmonton Zone
and Facility Chief Geriatrics for Sturgeon Community Hospital, AHS
 Marissa Bonuccelli, Manager Physician Payments, Alberta Medical Association
 Allan Florizone, Senior Advisor, Policy and Economics, Alberta Medical Association
 Andrea Thain Liptak, Director, Primary Care and Chronic Disease Management, Alberta
Health Services
 Barb Lockhart, Director, Primary Care and Chronic Disease Management, Alberta Health
Services
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 3
 JoAnn Beckie, Director, Primary Care and Chronic Disease Management, Alberta Health
Services
 Stephanie Donaldson, Director, Primary Care and Chronic Disease Management, Alberta
Health Services
 Lisa Kemp, Primary Care Manager, Primary Care and Chronic Disease Management,
Alberta Health Services
 Saskia Sivananthan, Consultant- Primary Health Care Division, Strategy Implementation
Support, Alberta Health Services
 Wendy Fuchs, Nurse Consultant- Geriatrics, Calgary West Central PCN, Alberta Health
Services
 Dr. Katherine (Kay) Rittenbach, Assistant Scientific Director, Addiction and Mental
Health SCN, Alberta Health Services
 Jas (Jasvinder) Chana, Director,- Family Care Clinics, Alberta Health
 Dr. Krista Bennett, Geriatric Lead, SAS PCN, Alberta Health Services
 Jacqueline Doran, RPN Seniors Outreach Nurse, Addictions and Mental Health Services
Vegreville, Alberta Health Services
 Zahra Goodarzi, Resident Student, Division of Geriatrics, University of Calgary
 Dr. Jack Bromley, Physician, Red Deer PCN
 Gail Sanders, RN (GNC), Seniors Mental Health Outreach Program-Stettler and area,
Alberta Health Services
 Lori Jack, Seniors Nurse, St. Albert & Sturgeon PCN, Alberta Health Services
 Dr. Valerie Smith, Clinical Section Lead, Seniors Health, Central Zone, Alberta Health
Services
 Kathy James Fairbairn, Pharmacist, Seniors Health Strategic Clinic Network Core
Committee Member
 Valerie Kiss, Primary Care Coordinator, Calgary Zone, Alberta Health Services
 Barb Ferguson, Executive Director, Alzheimer Society of Calgary
 Wendy McLean, Executive Director, Primary Care, Chronic Disease Management and
Family Health, North Zone, Alberta Health Services
 Dr. Jasneet Parmar, CH Network of Excellence in Seniors' Health and Wellness,
Covenant Health
 Susan Wiens, Executive Director, Big Country PCN, Alberta Health Services
 Carla Prediger, Care Manager, Addictions and Mental Health, North Zone, Alberta
Health Services
 Dr. David Hogan, Brenda Strafford Foundation Chair in Geriatric Medicine, University
of Calgary
 Dr. Sheri Fielding, Clinical Director, Southside PCN, Alberta Health Services,
 Shannon Berg, Executive Director, Primary Care Branch, Alberta Health
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 4
 Dr. Jayna Holroyd-Leduc, Scientific Director, Seniors Health SCN, Geriatric Medicine,
University of Calgary
 Jake Jennings, Program Manager, East Calgary Family Care Centre, Alberta Health
Services
 Lesley Myles, Area Manager, Seniors North Home Care Dementia Care Team, Calgary
Zone, Alberta Health Services
 Dr. James (Jim) Silvius, Provincial Medical Director, Seniors Health, Alberta Health
Services
 Dawn Estey, Manager, Chronic Disease Management, Alberta Health Services
 Laurie Blahkita, Executive Director, Public Health, Alberta Health Services
 Lorna Milkovich, Executive Director, Red Deer PCN, Alberta Health Services
In addition to Core members, a broad range of other “consulting” members will be identified as
the process continues.
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 5
Appendix A
Alberta Dementia Strategy and Action Plan
Public Awareness Working Group Membership List
Membership List
1. Laura Forsyth Co-Chair Alberta Seniors, Manager, Seniors Policy
2. Jill Petrovic Co-Chair Alzheimer Society of Calgary, Director, Philanthropy & Engagement
(Communications Manager)
3. Aruna Mitra Member Bethany Care Society, Senior Director Clinical Operations
4. Bernie Travis Member EODA (Early Onset Dementia Alberta)
5. Christi RetsonSpalding
Member Alberta Health Services, Communications, Seniors Health and the SCN
6. Corrine Parker Member Alberta Health, Executive Director, Wellness Branch
7. Donna Durand Member Alberta Council on Aging, Executive Director
8. Eric Austin Member Alberta Health, Continuing Care, Policy Advisor
9. Erin Bampton Member Good Samaritan Society, Acting Vice President of Care and Quality
10. Jennifer MabugatChan
Member Lifestyle Options, Director of Care / Clinical Lead
11. Jessica Twidale Member Alzheimer Society Alberta and NWT, Director, Revenue Development
12. Jody Wood Member Human Services, Office of the Public Guardian and Trustee, Policy Analyst
13. Kathleen Thurber Member Alberta Innovates Health Solutions, Director, Communications
14. Lauren Drogos (Dr.) Member University of Calgary, Postdoctoral Scholar
15. Neal Watson Member Alberta Seniors, Communications, Public Affairs Officer
16. Carol Ching Secretariat Alberta Seniors, Senior Policy Analyst
17. Nora Yaghi Alberta Health, Continuing Care, Manager, Quality Improvement
18. Rebecca Rogers Alberta Health, Continuing Care, Research and Policy Analyst
Quality Improvement Unit
19. Nadia Mahfoud For Corinne Parker
20. Lynne Mansell Alberta Health Services, Senior Provincial Director,
Seniors Health and Bone & Joint Health SCNs
21. Sophie Sapergia Alberta Health Services, Practice Lead - Dementia Initiatives
Seniors Health Strategic Clinical Network / Dementia Journey Working Group
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 6
Appendix A
Alberta Dementia Strategy and Action Plan
Dementia Journey Working Group Membership List
Membership List
Potential members include:
 Kathryn Brandt, Co-Chair, Alberta Health Services
 Renate Sainsbury, Co-Chair, General Manager, Lifestyle Options Retirement
Communities
 Suzanne Maisey, Director of Quality Improvement, Shepherds Care Foundation
 Dr. James (Jim) Silvius, Provincial Medical Director, Alberta Health Services
 Dr. Elisa Mori-Torres, Site Co-Chief, Glenrose Rehabilitation Hospital
 Melody Brackenbury, Manager of Clinical Quality and Education, Christenson
Communities
 Irfan Ansari, Planning Advisor, Municipal Affairs
 Deb Rakos, Lethbridge Representative, Early Onset Dementia Alberta
 Sarah Nitsche, Occupational Therapist, Intercare
 Nesrin Koybasi, Occupational Therapist, Intercare
 Paulette Killam, Executive Director, Residential Support Services, Alberta Human
Services
 Elizabeth Tanti, Director of Care, Capital Care
 Jennifer Chan, Director of Care, Lifestyle Options Retirement Communities
 Donna Durand, Executive Director, Alberta Council on Aging
 Padma Genesh, Learning Specialist, Alzheimer Society of Calgary
 Carmen Grabusic, Director, Continuing Care Branch, Alberta Healh
 Lesley Myles, Area Manager, Calgary Zone Home Care Program
 Cheryl Okoli, Clinical Nurse Specialist, Calgary Zone Home Care
 Tracy Imai, Manager FCC Implementation, Primary Health Care Branch, Alberta Health
 Aruna Mitra, Senior Director Clinical Programs and Education, Bethany Seniors
 Suzette Bremault-Phillips, Professor Rehabilitation Medicine, University of Alberta
 Jane Bankes, Manager Integration and Advance Practice, Integrated Seniors and
Community Care Calgary Zone
Awaiting response…
 Barry Andres, Acting Executive Director, Provincial Addiction and Mental Health Team,
Alberta Health
 Doug Vincent, Director, Alberta Health Services
 Vivien Lai, Vice President Strategic Development, Brenda Strafford Foundation
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 7
Appendix A
Alberta Dementia Strategy and Action Plan
Care Partner Support Working Group Membership List
Membership List
Member Organization
Barb Ferguson Alzheimer Society of Calgary
Dr. Jasneet Parmar Covenant Health
Rachel Bryant Alberta Health
Anna Mann Alberta Care Givers Association
Sarah Lucas Alberta Health
Kimlang Lor AHS, Calgary Home Care
Larry Quintillo Early Onset Dementia Association
Ivan Radostits Alzheimer Society of Alberta and the Northwest Territories
Arlene Huhn Alzheimer Society of Alberta and the Northwest Territories
Bobbi Junior Care Partner of Albertan with dementia
Grace Maier AHS, Glenrose
Laurel Van De Keere Alberta Seniors
Laura Forsyth Alberta Seniors
Denise Holman AHS, Seniors Home Care, Caregiver Strategy
Claire Neeland AHS, Seniors Home Care, Caregiver Strategy
Laurie Grande ASANT, First Link Coordinator
Norah Keating International Association on Aging and Gerentology
Tammy Hopper Faculty of Rehabilitation, University of Alberta
Christine Ceci University of Alberta
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 8
Appendix A
Alberta Dementia Strategy and Action Plan
Acute Care and Crisis Management Working Group
Membership List
Potential members include:
 Dr. Duncan Robertson, Co-Chair, Senior Medical Director, Seniors Health, Strategic
Clinical Network, Alberta Health Services
 Scott Baerg, Co-Chair, Senior Operating Officer, Mental Health & Seniors Care,
Covenant Health
 Dr. Darryl Rolfson, Co-Chair, MD, FRCPC, Associate Professor of Medicine, University
of Alberta
 Mollie Cole, Manager, Seniors Health Strategic Clinical Network, Alberta Health
Services
 Dr. James (Jim) Silvius, Provincial Medical Director, Community and Seniors Health,
Alberta Health Services
 Verdeen Bueckert, RN, Practice Lead, Alberta Health Services
 Bonnie Launhardt, RN, Program Manager, Misericordia Hospital
 Michelle Smith, Manager, Acute Care, Alberta Health
 Sharon Enslen, Manager- Complex Families and Youth, Addition and Mental Health,
Alberta Health
 Derek Clark, Policy Analyst, Continuing Care, Alberta Health
 Rishma Rhemtulla, NP Geriatric Consultation- Specialized Geriatrics, South Health
Campus, Integrated Seniors and Community Care Calgary Zone
 Loralee Fox, Seniors Health Geriatric Consultation, Foothills PCN, Integrated Seniors
and Community Care Calgary Zone
 Marsha MacDonald, GNP Geriatric Consultation- Specialized Geriatrics, Integrated
Seniors and Community Care Calgary Zone
 Crystal Bode, CoACT Senior Practice Consultant, Culture, Transformation & Innovation,
Alberta Health Services
 Dr. Valerie Smith, Clinical Section Head, Seniors Health, Central Zone, Alberta Health
Services
 Dr. Lesley Charles, Program Director, Division of Care of the Elderly, Grey Nuns
Community Hospital
 Zahra Goodarzi, Resident Student, Division of Geriatrics, University of Calgary
 Dr. David Hogan, Brenda Strafford Foundation Chair in Geriatric Medicine, University
of Calgary
 Grace Maier, Director, Specialized Geriatrics, Glenrose Rehabilitation Hospital, Alberta
Health Services
 Bernie Travis, Public Member, Early Onset Dementia Alberta
Alberta Dementia Strategy and Action Plan
Working Groups
Draft Terms of Reference
Draft – April 23, 2015
Version 1.0 9
 Betty Payne, Public Member, Early Onset Dementia Alberta
 Dr. Lorraine Venturato, Co-team Lead, Hotchkiss Brain Institute Neuro-team for
Dementia and Cognitive Impariment
 Dr. Jayna Holroyd-Leduc, Scientific Director, Alberta Seniors Health SCN Associate
Professor, Section of Geriatrics Departments of Medicine and CHS, University of
Calgary
 Dr. Jean Triscott, Director, Division of Care of the Elderly, Glenrose Rehabilitation
Office
 Krista Rushforth, RN Care Manager, Seniors North Home Care and the Dementia Care
Team, Calgary Zone Home Care Program
 Dr. Annette Lane, Associate Professor, Faculty of Nursing, Athabasca University
 Dr. Tolulola Taiwo, Care of the Elderly Physician, Specialized Geriatric Services, Red
Deer Regional Hospital Centre
 Dr. Marjan Abbasi, Geriatrician, Misericordia Hospital
 Dr. Jed Shimizu, Care of the Elderly Physician, Misericordia Hospital
 Heather Hair, Clinical Network Manager, Emergency SCN, Alberta Health Services
 Dr. Ann Colbourne, Senior Medical Director, Culture, Transformation & Innovation,
Alberta Health Services
 Dr. Alexandra Marin, Care of the Elderly Physician, Misericordia Hospital
 Cheryl King, RN, Alberta Health Services
 Dr. Karen Fruetel, Medical Leader, Integrated Seniors and Community Care, Alberta
Health Services
 Jane Bankes, Manager Integration and Advance Practice, Integrated Seniors and
Community Care, Alberta Health Services
 Melissa Kim, RN, Rockyview General Hospital Emergency Department
 Laurie Wilson-Larson, Recreation Therapist
 Dr. Kathy Lechelt, Geriatrician, U of A Hospital, Alberta Health Services
 Dr. Jimmy Kwok, Geriatrician, Alberta Health Services
 Ginny Cummings, Pharmacy Clinical Practice Leader, Alberta Health Services

http://edmontonjournal.com/news/politics/alberta-dementia-strategy-coming-soon-health-minister-promises

Alberta dementia strategy coming soon, health minister promises

Published on: June 5, 2017 | Last Updated: June 5, 2017 5:52 PM MDT
Deputy Premier Sarah Hoffman
Alberta Health Minister Sarah Hoffman. DAVID BLOOM / POSTMEDIA
Alberta health officials are hashing out the details of a provincial dementia strategy, to be unveiled in the coming weeks.
Dementia cases are set to skyrocket as the population ages, with one in every 30 Albertans projected to be living with the disease by 2025.
For Alzheimers Society CEO Michele Mulder, a provincial strategy is critically important.
But Mulder, much like Health Minister Sarah Hoffman, doesn’t want to rush it.
“It’s important that we work together to get the right strategy, the Made in Alberta strategy,” she told the Journal.
Ideally, Mulder said, the strategy needs to focus on the future and be comprehensive enough to meet the complex needs of people living with the disease.
A strategy has been in the works since October 2014, and Alberta Health mentioned the project in its 2015-16 annual report.
It’s still nowhere to be seen, but Hoffman said Monday developing the plan is a priority for her department.
Alberta Party Leader Greg Clark recently blasted Hoffman in the house over the lack of a provincial strategy, saying he was concerned about the government’s commitment to dementia care.
“Without a strategy, how do you know what you’re doing and why you’re doing it and if the resources are in place that you need?” he asked.
In response, Hoffman cited increases in long-term care and dementia care spaces as proof the province is taking steps to deal with the growing numbers of people suffering from cognitive impairment.  

Sights set on supports

On Monday, Hoffman said along with more care beds, a big part of the strategy will focus on partnerships with community agencies.
“We’re also working to make sure we’ve got the right strategy with the right resources to keep families as close together as possible, and of course keep residents safe,” Hoffman said.
For Mulder, the ideal plan will work hand-in-hand with the upcoming national dementia strategy, and improve the quality of life of dementia patients and their care-givers.
Mulder said it would also keep dementia patients in their homes or home communities for as long as possible.
“That’s the goal we all want to work for,” she said.  
egraney@postmedia.com


Julie Ali · 
As far as I can determine the GOA approach to the upcoming dementia Tsunami is to ignore the sea. In other words, there is no strategy, there is no plan and everyone is winging it.

What this means for families is that we have to take care of our own at home. Families with enough money might be to pay for private care providers. Putting your family member in the continuing care system is not ideal. The PCBF )Patient Care Based Funding) business is pretty poor in my opinion. Apparently PCBF is supposed to provide more money for more work but this does not seem to be the case in the experience of our family. I'm not sure what sorts of helps are available for dementia patient actually but I am not optimistic about the integrated care plans for these patients.

Also the dementia cases do not appear to be considered long term care patients where there are at least RNs around. These patients are considered supportive living-4-Dementia cases and I don't know if this is the right place for these folks.

In any case, my feeling is that families are the primary caregivers of patients with dementia. This means burnt out spouses, extended family acting as personal care attendants 24/7. I guess there could be home care of sorts but our experience of home care was that it was a fragmented system with many providers and the entire business was more work than just doing it yourself.

I would not depend on the GOA for a dementia strategy. Best to make up a care plan by yourself or with the help of the Glenrose Rehabilitiation Hospital where you can get competent help from a geriatric specialist. But just remember--the family is going to have to do the work of caring for dementia patients because the GOA has been waffling on a strategy just as it has been waffling about the long term care beds and the underfunding of the continuing care system. All talk. All spin. No action.
LikeReply3 mins
Dar Dealmeida
Good plan, keeping patients near families is number one! Second is ensuring that the private care centers are operating properly. Sufficient staffing is my concern! We do not need care givers in the kitchen and laundry areas - care givers should stick to the patients! I believe private centers often cut corners because they are more concerned with their take home then the people!
LikeReply17 hrs
Dar Dealmeida
Cut costs that is!
LikeReply4 hrs
Julie Ali · 
Yeah it is a good plan. No need to build long term care facilities if the dementia cases can be serviced more cheaply in SL4-Dementia wards. Even better if they are home because the family can service the patient. It's a win win for the partners in care. For the burnt out spouses, children and extended family-its heart work and the time of our lives.
The dementia strategy like most of the work done at Alberta Health and AHS appears to be all chatter and then poor decision making as in the case of the $14.2 million wasted on the Pure North program for no deliverables. Far better to develop humane dementia communities where the end of life might be decent rather than fragmented. But then we'd require a government with the public interest in mind-- to do this sort of work.
LikeReplyJust now

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