Sunday, May 21, 2017

Julie Ali Just now · Commenting for Edmonton Journal · Troubling gap between patients and health system in terms of the issue of Lyme Disease. We are being told by health officials that this illness is not a problem and yet we have the citizens indicating that this disease is a problem and that the system in Canada is not equipped with dealing with it. The current situation seems to be that the sufferers are more aware of the problems than the doctors or the bureaucrats. I'm of the opinion that this is a major public health issue in some parts of Canada and as citizens we need to educate ourselves on the problems of this disease. It's unfortunate but the health care system is not as reliable as social media in some cases and in this particular public health issue I am going to trust the people who have suffered the failures in the health care system and who have to pay out of pocket for treatment as noted in this campaign: https://www.change.org/p/minister-philpott-ticking-lyme-bom…

#TickingLymeBomb--Based on the information I have read I tend to believe that Lyme Disease is a major public health issue. It's also unknown for the most part.
Since reading the heart breaking stories of families afflicted with the disease, I am taking precautions that I had never considered in the past. It's important to understand that the machinery of government and the public health system is very big and unwieldy; this means that the system is slow to respond to public health issues such as the problem with opiates and now with Lyme Disease.
I'd say we read up on the disease and be proactive. It's also useful to write to the government at all levels about developing a Lyme Disease strategy that is productive and which does not appear to be currently in place.
LikeShow more reactions
Comment
Troubling gap between patients and health system in terms of the issue of Lyme Disease. We are being told by health officials that this illness is not a problem and yet we have the citizens indicating that this disease is a problem and that the system in Canada is not equipped with dealing with it. The current situation seems to be that the sufferers are more aware of the problems than the doctors or the bureaucrats.
I'm of the opinion that this is a major public health issue in some parts of Canada and as citizens we need to educate ourselves on the problems of this disease. It's unfortunate but the health care system is not as reliable as social media in some cases and in this particular public health issue I am going to trust the people who have suffered the failures in the health care system and who have to pay out of pocket for treatment as noted in this campaign:
In this video, you will meet Nicole Bottles, a 24 year old from Victoria B.C., who explains her 9-year battle with Lyme disease from her wheelchair. She was just 15 years old in Grade 10, when her life as she knew it changed forever.
Nicole highlights the problem we are all going to face. A tick explosion is underway. Canada is currently NOT equipped to prevent, educate, diagnose or treat people who get infected. Nicole saw countless specialists and endured endless testing including the flawed Canadian test for Lyme. She was forced to leave the country to receive proper diagnosis, testing and treatment.
Canadian families are currently paying out of pocket for treatment. Lyme patients report spending tens of thousands of dollars on necessary care, placing families in financial jeopardy. Nicole’s family and friends all pitched in tens of thousands of dollars to cover some of her costs. Who will pay for your care if you need it?
Nicole’s hope for ALL Canadians is that the Action Plan for Lyme will be the “catalyst for change”.

Albertans who discover ticks on themselves or their animals are being asked to submit the bugs to help the province’s monitoring program for the bacteria…
EDMONTONJOURNAL.COM

LikeShow more reactions
Comment

http://edmontonjournal.com/news/local-news/albertans-asked-to-submit-ticks-to-aid-provincial-monitoring-efforts

Albertans asked to submit ticks to aid provincial monitoring efforts

Published on: May 21, 2017 | Last Updated: May 21, 2017 1:44 PM MDT
Black-legged ticks
Black-legged ticks POSTMEDIA
Albertans who discover ticks on themselves or their animals are being asked to submit the bugs to help the province’s monitoring program for the bacteria associated with Lyme disease.
The government says previous testing has found little risk of getting Lyme disease in Alberta, because the types of ticks who carry the bacteria do not have well established populations in the province.
Nonetheless, the government has kept up a monitoring program that was expanded in 2013 to include ticks found on people and in the environment.
“Thanks to Albertans who have submitted ticks, government has been able to monitor what types of ticks are in the province,” Dr. Kristin Klein, deputy medical officer of health for Alberta Health said in a written statement.
“Although the risk of getting Lyme disease in Alberta is very low, I encourage Albertans to keep submitting ticks they find so we can continue to assess this risk.”
Those who find ticks can submit them to an Environmental Public Health Office, a First Nations health centre or a physician, while ticks discovered on pets or livestock should be submitted to a veterinarian.
Alberta Health has posted instructions online on how to safely remove a tick.
A total of 2,781 ticks were submitted to the monitoring program last year. Just 34 ticks — or about 1.2 per cent — tested positive for the Lyme disease bacteria.
The province said 88 cases of Lyme disease have been reported to Alberta Health in the last 26 years, though all of the cases were acquired while travelling outside the province.
kgerein@postmedia.com
twitter.com/keithgerein

Julie Ali · 

Important project but I am curious about what is being done to diagnose and treat Lyme Disease in Alberta and in Canada.

It appears the resources dedicated to this disease are insufficient as noted in this campaign:

https://www.change.org/.../minister-philpott-ticking-lyme...

Petitioning Health Minister Jane Philpott and 4 others
Ticking Lyme Bomb in Canada. YOU are at RISK. Sign now!
Canadians Concerned About Lyme Disease

Lyme disease is one of the fastest spreading infectious diseases in the world.
Please sign this petition asking the Canadian Government to reject the current draft Action Plan (Framework) for Lyme disease and FIX IT. The Framework must recognize the seriousness of this disease for all of us. Time is ticking. Canada has NO Plan. You could be the next BITE.
Lyme Disease is carried by ticks, which are migrating all across Canada at an alarming speed. Canadian scientists predict that by the year 2020, 80% of the population in Eastern Canada (including Manitoba) will be living in a tick-populated area. [1]
The Lyme bacteria can also be passed from pregnant mother to her child in the womb[2] and there are concerns this infection may be sexually transmitted.[3] Babesia, a Lyme Co-Infection, has been found to be in the U.S. blood supply.[4]
According to the Centre for Disease Control (CDC), there are 300,000 NEW cases of Lyme in the US every year most of which occur within 400 miles of the Canadian border. The numbers in Canada are also growing FAST.[1]









https://www.change.org/p/minister-philpott-ticking-lyme-bomb-in-canada-fix-canada-s-lyme-action-plan-now

Ticking Lyme Bomb in Canada. YOU are at RISK. Sign now!

Lyme disease is one of the fastest spreading infectious diseases in the world.
Please sign this petition asking the Canadian Government to reject the current draft Action Plan (Framework) for Lyme disease and FIX IT.   The Framework must recognize the seriousness of this disease for all of us.  Time is ticking. Canada has NO Plan.  You could be the next BITE.
Lyme Disease is carried by ticks, which are migrating all across Canada at an alarming speed.  Canadian scientists predict that by the year 2020, 80% of the population in Eastern Canada (including Manitoba) will be living in a tick-populated area. [1] 
The Lyme bacteria can also be passed from pregnant mother to her child in the womb[2] and there are concerns this infection may be sexually transmitted.[3]  Babesia, a Lyme Co-Infection, has been found to be in the U.S. blood supply.[4]
According to the Centre for Disease Control (CDC), there are 300,000 NEW cases of Lyme in the US every year most of which occur within 400 miles of the Canadian border.  The numbers in Canada are also growing FAST.[1]
In 2014 Bill 442 was passed, requiring the Canadian Government to create a Lyme Action Plan (Framework).  The draft Framework was released on February 7, 2017 for public comment.  This draft Framework fails to take real action, has no funding, and fails to protect Canadians from Lyme.   We need you to sign this petition to demand this draft Framework be rejected in its current form.
All Canadians are at risk.  All it takes is a walk in the grass, a hike on a trail, a day of gardening or golf and for our kids - playing outside in the schoolyard or in a park.  Your pets can bring ticks into your house. Who would think that a tick the size of a poppy seed you may never notice, has the impact of a bomb going off in your body and your life?
In this video, you will meet Nicole Bottles, a 24 year old from Victoria B.C., who explains her 9-year battle with Lyme disease from her wheelchair.  She was just 15 years old in Grade 10, when her life as she knew it changed forever.
Nicole highlights the problem we are all going to face.  A tick explosion is underway.  Canada is currently NOT equipped to prevent, educate, diagnose or treat people who get infected.  Nicole saw countless specialists and endured endless testing including the flawed Canadian test for Lyme.  She was forced to leave the country to receive proper diagnosis, testing and treatment.
Canadian families are currently paying out of pocket for treatment.  Lyme patients report spending tens of thousands of dollars on necessary care, placing families in financial jeopardy. Nicole’s family and friends all pitched in tens of thousands of dollars to cover some of her costs.   Who will pay for your care if you need it?
Nicole’s hope for ALL Canadians is that the Action Plan for Lyme will be the “catalyst for change”. 
Nicole and thousands of other Lyme sufferers across Canada are devastated to see that this Framework has NO ACTION at all. The draft Framework is a violation of Public Health’s mandate, Bill 442 and possibly the Canadian Charter of Rights and Freedoms (s. 7) granting all Canadians the right to life, liberty and security of the person.
On March 7, 2017 the window will close for public feedback.
[APRIL 29th UPDATE: Minister Philpott, despite numerous requests, has not agreed to talk to or meet with us despite almost 40,000 signatures and over 10,400 comments.  Sue Faber and Jennifer Kravis are headed to Ottawa on May 2nd for the second time to raise these Canadian voices to Members of Parliament.  Follow their journey here: https://www.facebook.com/lymehopecanada/
MARCH 9TH UPDATE: Yesterday (March 8, 2017) Public Health Agency of Canada (PHAC) stopped accepting public feedback.  PHAC received notice of over 36,000 signatures before their cut-off date.  This Petition will continue until the original goal, to have Minister Philpott reject the draft Framework, is met.]
Please sign this petition asking the Canadian Government to reject the current draft Federal Framework for Lyme disease and FIX IT.   The Plan must recognize the seriousness of this disease for all of us.  Time is ticking. Canada has NO Plan.  You could be the next BITE.   #TickingLymeBomb

SIGN THE PETITION AND SHARE WIDELY 

Please ALSO send an email to your local MP – it will only take 2 clicks and a letter will be automatically sent to your MP asking him or her to attend an all-party MP round table meeting to learn about Lyme Disease on Monday March 6, 2017.  Go to www.lymehope.ca enter your name, email and postal code, and click "send".  Simple.
[MARCH 9TH UPDATE: The MP Round Table was held in Ottawa on Monday March 6th.  We continue to suggest that concerned Canadians write their MPs via the MP Letter link on www.lymehope.ca to ask him or her to encourage Minister Philpott to reject the draft Framework. ]
Have you or someone you know been personally affected by Lyme?  Write a personal “Lyme Letter” (or use our template).  Instructions are on www.lymehope.ca
This petition will go to:
 Prime Minister Justin Trudeau
Federal Health Minister Jane Philpott
Public Health Agency of Canada

A copy of the petition will be sent to:
Lyme Letters Campaign www.lymehope.ca
CanLyme, Canada’s National Lyme Advocacy Group

For More Information:
On Lyme Disease & Co-Infections: www.canlyme.com and www.ilads.org
On the Lyme Letters Campaign: www.lymehope.ca

References:
 [1] Patrick A. Leighton, Jules K. Koffi, Yann Pelcat, L. Robbin Lindsay, Nicholas H. Ogden. Predicting the speed of tick invasion: an empirical model of range expansion for the Lyme disease vector Ixodes scapularis in Canada.Journal of Applied Ecology, 2012; http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2664.2012.02112.x/abstract;jsessionid=BDF9CD369FD70D6E8CA8FF16A4AA5015.f04t01

This petition will be delivered to:
  • Health Minister Jane Philpott
  • Prime Minister Justin Trudeau
  • Public Health Agency of Canada



No comments:

Post a Comment