Monday, April 17, 2017

not my sister not my sister / not my sister

every day I wrote to the government of Alberta
I asked for help from AHS and Alberta Health
when no one helped me
I went to everybody else
I begged for her life shamelessly
and then
I got off the floor of powerlessness
and I told her story to the world

I tell you secrets we all end up in the same place the door opens and we must go through and then what will all these things we carr...

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I tell you secrets
we all end up in the same place

the door opens
and we must go through

and then what will all these things
we carry do for us?

when we arrive at the door
that we must go through  

how will we be?
I watch the faces of those I meet

and I ask the questions
that get no answers

I tell myself
that they are all learning as well

I keep going
and do the work that is mine to do

I don't know how to do this work
but I will learn as I keep doing

I wished for an easy life
which was given to me

but then one day 
I saw my sister in a photograph

she was speaking to Santa
and I knew then

not my sister     not my sister 
  not my sister

I spoke the words
fiercely   and I worked for her 

every day I wrote to the government of Alberta
I asked for help from AHS and Alberta Health

when no one helped me
I went to everybody else

I begged for her life shamelessly
and then 

I got off the floor of powerlessness

and I told her story to the world

I spoke about three health ministers
who told me to go to the folks at AHS

I spoke about the meetings
where no one did anything

I said the actions of doctors
who I called doctors of death

because they prescribed
premature termination for a handicapped woman

and I begged for help
every day I asked for an audit

or at least an investigation 
of the care but no one did anything

and so this stay at home mummy
did the work that government in Alberta

refused to do
I became the investigator of the system

and I wrote the discoveries
so that other families would be like me

and not wait for the government of Alberta
we are to be the change that we want to see in the system

 I tell the families
do not stay silent    your silence will not save your families

instead speak
one day I told myself

not my sister     not my sister 
  not my sister

Good Samaritan Society Lawsuit Statement of Defence 

May 21, 1996
Hansard Record - Govt of AB
May 21, 1996
February 25, 1996 death - Jennifer Fortier from detached ventilator

Aug 15, 1996
Hansard Record - Govt of AB
August 15, 1996
November 24,1995 death - George Clark from detached ventilator

May 21, 1996
Hansard Record - Govt of AB
May 21, 1996
Jennifer Fortier's fatality report
Died 1996, Feb 25 - detached ventilator/suffocation
Aug 21, 1997
Fatality Inquiry Report
August 21, 1997
February 25, 1996 death - Jennifer Fortier from detached ventilator
Dec 13, 2002
News article Edmonton Journal
December 16, 2002
December 13, 2002 death of 72 year man from detached ventilator
Aug 30, 2006
Hansard Record - Govt of AB
August 30, 2006
Continuing Care Costs
May 7, 2013
Hansard Record
May 7, 2013
Care for Dementia Patients William Buckley
April 9, 2013
Fatality Inquiry Report

July 18, 2010 death of William Evan Buckley
May 14, 2013
January 2015
Alberta Health CCHSS Audit
Oct 9, 2015
Investigation file Protection for Persons in Care (PPC) File # 8523
Particular pages
Oct 2, 2015
Director’s Decision Protection for Persons in Care (PPC) File  # 8523  Allegations #8523.001 and #8523.002
Care and Medical Records Good Samaritan Millwoods
Medical Records Grey Nuns Hospital
Medical Records UAH/ Royal Alexandra Hospital
Emergency/ Admission / Discharge Documents and Consultant reports
ABG results and summary
Letters/Faxes E-mails  from VitalAire
compliance monitoring
Downloads Medigas and Vitalaire Compliance Information (Good Samaritan Extended Care at Millwoods)
Downloads Medigas and VitalAire Compliance Information (Grey Nuns Hospital and Villa Marguerite)
BIPAP AVAPS user manual
VitalAire Quick set up of your BIPAP Device
VitalAire Successful BIPAP Treatment
Jan 22, 2015
Respiratory Information Sheet
BIPAP AVAPS Respironic ownership - ADL

Serial Number C13030482EF74
Oct 13, 2015
E-mail to B V
Re BIPAP AVAPS Respironic ownership (ADL)
Respiratory Letters - Dr Damant and Government of Alberta
Care plans and Resident Care Conferences
Good Samaritan MW  
Cognitive and Capacity Testing
For R. Ali
May 26, 2010
Personal Directive
November 22, 2015
Supported Decision Making Authorization Form
End of life orders/ DNR orders/Goals of Care designations
Alberta Continuing Care Info System Assessments (ACCIS)
Eviction Correspondence
E-mails and Letters
Feb 19, 2015
Recording of first banning Voice Recording  of Banning

Sept 3,  2015
Voice Recording of second banning

The Good Samaritan Society  SAP Manual Worksheet MWC004 -MILLWOODS RESPIRATORY
The Good Samaritan Society Vendor Receipt Report-Detail
The Good Samaritan Society
Supply Area Profile Valuation
The Good Samaritan Society Department Expense Detail Report by Category
The Good Samaritan Society Process Manual with revisions
The Good Samaritan Society Non-consolidated Financial Statements
May 22, 2007
Newspaper article
“Changes promised after Mountain View protest”
December 21, 2007
Newspaper article
“Concerns at Mountain View Centre raised again”
March 19, 2012
Newspaper article
“Confusion over long-term care”
April 2, 2012
Newspaper article
“AHS responds to long term care concerns”
November 19, 2012
Newspaper article
“The push for a long-term care facility”
April 30, 2013
Newspaper article
“Good Sam needs changes: Long Term Care Working Group”
May 13, 2013
Newspaper article
“Good Sam fatality report causes worry in Hinton”
May 13, 2013
Newspaper article
Doubt surrounds seniors care facility”
August 29, 2013
Newspaper article
“Seniors issue a community problem
October 8, 2013
Newspaper article
“Care facilities deemed insufficient for Hinton’s needs by working group
October 12, 2013
Newspaper article
“Hinton’s seniors need more support, says working group
October 21, 2013
Newspaper article
“Hinton’s elders deserve better
December 3, 2014
Newspaper article
“Linden View care concerns voiced
December 10, 2014
Newspaper article
Bikman brings Linden View issues to seniors minister”
December 10, 2014
Newspaper article
“Linden View debate needs discussion”
December 18, 2014
Newspaper article
“Changes being made at Linden View”
December 23, 2014
Newspaper article
“Flip flop by Linden View management”
May 19, 2005
Disciplining a Nursing Home Senior – May 19, 2005
March 24, 2015
Presentation to Legislature
March 24, 2015
Online News Article  and Soundwave Document
Public Interest Alberta (PIA)
June 2015
Continuing Care Resolution Team Feedback Summary
Appendix B -page 15
Alberta Health Services
Continuing Care Resolution Team
Final Report
June 24, 2015
Presentation to Legislature
June 2015
TV broadcast  - Alberta Primetime
2 Part Video
September 9, 2015
Newspaper article - Edmonton Sun
September 9, 2015
Newspaper article
“People banned from visiting family in hospital demand provincial help.”
September 10, 2015
Newspaper article
“Banned hospital visitors fight back.”
September 10, 2015
Newspaper article
“Family members speak out after being banned from care facility.”
October 2015
Online Survey Report
Health Quality Council of Alberta (HQCA) Survey
Long Term Care Family Experience pages
October 2015
Online Survey Report
HQCA LTC Family Experience
2014-15 Survey Report - Provincial Results
Newspaper article
“Ratings released for long-term care facilities”
Newspaper article
“City care centre ranks last
Good Samaritan has lowest ranking among long-term facilities in Alberta”
Newspaper article
“Health watchdog ranks Alberta long-term care centres.”
October 28, 2015
Online Newspaper article
Newspaper article
“Watchdog hands out report cards for long-term care .”
November 5, 2015
Newspaper - Letter to Editor
” Experienced staff crucial to long-term care”
November 17, 2015
Online Newspaper article
“Government directs AHS to develop policy on banning visitors at long-term care facilities”
November 18, 2015
Online Newspaper article
“Alberta Health Services Ordered To Create Clear Policy For Banning Visitors At Long-Term Care Homes”
March 26, 2014
Health Quality Council of Alberta report
“Review of Alberta Health Services’
Continuing Care Wait List: First Available Appropriate Living Option Policy - March 26, 2014”
April 30, 2014
Health Quality Council of Alberta report
Review of Quality Assurance in Continuing Care Health Services in Alberta -  April 30, 2014
June 4, 2014
Newspaper article
“Health watchdog calls for better oversight of care facilities
June 5, 2014
Online Press Release
“HQCA releases two reports that address continuing care in Alberta”
June 5, 2014
Online Newspaper article
“Continuing care in Alberta will be better, promises province
Promise follows release of two reports critical of Alberta health policies
June 5, 2014
Online Newspaper article -
“Confusion in Alberta continuing care: report”
Photographs and video


Blog posts limited to affidavit

How does one prepare for Questioning? You do the work of preparation by looking through the medical files, the Protection for Persons in Care abuse cases (2 of them), what little audit information you have been given by the folks at Alberta Health (only the CCHSS audit of January 2015 was provided).
I have still not got:
1) Alberta Health Quality Audit of the Good Samaritan Extended care at Millwoods that was done in 2014.
2) AHS Quality Review of 2014
3) Good Samaritan Society consultant report on the respiratory services done in 2014
4) Any other complaints and audits that pertain to this case and other facilities
Although it is one week before questioning no one in the government of Alberta or the Good Samaritan Society have provided the outstanding information. Why not? I guess because they don't have to provide this information to citizens who are being sued. It's our problem.
So without the information I need to defend myself in court I have to sieve through Rebecca's medical files.
I look through all the hospital and emergency visits and tabulate them here:
List of hospitalizations and emergency visits
Grey Nuns Hospital (GNH) February 20, 2010 Emergency
GNH February 22, 2010 Emergency
GNH February 22, 2010 to April 28, 2010 Hospitalization
University of Alberta Hospital (UAH) July 6 to July 12, 2010 Hospitalization
GNH August 23 to August 25, 2010 Hospitalization
GNH September 27 to September 29, 2010 Hospitalization
GNH October 1, 2010 Emergency
GNH November 4 to November 6, 2010 Emergency
UAH November 6 to November 18, 2010 Hospitalization
GNH March 14 to April 21, 2011 Hospitalization
GNH July 19, 2011 Colonoscopy Routine
UAH April 26, 2011 to May 5, 2011 Hospitalization
UAH November 30 to December 8, 2011 Hospitalization
GNH August 1, 2012 Emergency
Royal Alexandra Hospitals (RAH) March 27, 2013 Emergency
GNH (ICU) August 18 to August 21, 2013 Hospitalization
UAH August 22, 2013 Emergency
RAH (ICU) August 22 to September 12, 2013 Hospitalization
GNH March 21 to April 11, 2014 Hospitalization
GNH (ICU) May 29 to June 3, 2014 Hospitalization
UAH June 12 to July 23, 2014 Hospitalization
GNH August 2, 2014 Emergency
GNH Aug 27, 2014 Cardiologist Routine
GNH September 26, 2014 Emergency
GNH November 15, 2014 Emergency
EMS to facility November 20, 2014
I also look for places where Rebecca was pushed through the cracks in our society where handicapped citizens are pushed through by the medical system. Why does this happen? Hospitals and continuing care places are cognisant that they cannot say that a citizen is too much trouble to keep alive and so they beat about the bush. This is how Rebecca was being forced through the cracks of our society. I will refer to the doctors as Doctor Death doctors 1, 2, 3 etc.
1) GNH September 27 to September 29, 2010 Hospitalization --Doctor Death # 1 says he notices that Rebecca is full code and offers his unwanted opinion that intubation would not go well. Please note that without intubation and with a failed BIPAP trial my sister will die.
2) GNH November 4 to November 6, 2010 Emergency -Doctor Death # 2 is pretty organized. She goes to all the other Doctor Deaths around her (# 3, 4 and 5) to back her up. As a consequence of agreement of Doctor Death # 2, 3, 4 and 5, Rebecca magically has full competence to deny treatment with sky high carbon dioxide levels plus limited IQ and isn't offered any other help. She was not allowed into ICU or even a regular medicine bed. She was deemed to be stable and booted out. Dad had to rush her to the UAH straight after where she was further treated.
3) Dad avoids further DNR crisis by refusing to take Rebecca to the Grey Nuns Hospital for carbon dioxide narcosis issues. This was probably why there were no premature termination attempts in 2011 and 2012.
4) GNH (ICU) August 18 to August 21, 2013 Hospitalization--While here Doctor Death 6 indicates happily that R3 status was "established with patient and father). Again she is dumped out supposedly stable from ICU but is taken to the UAH straight after.
5) UAH August 22, 2013 Emergency --Doctor here (not a doctor death doctor) is frankly bewildered by the sea of premature termination orders he is confronted with. He says GNH ICU indicates R3 (no intubation and chest compressions) but Good Samaritan Extended Care information says full code.
Meanwhile he sees what we have seen which is the good work of premature termination orders --no ICU/no intubation.
6) RAH (ICU) August 22 to September 12, 2013 Hospitalization-they just do the full code
7) GNH (ICU) May 29 to June 3, 2014 Hospitalization--Not to be deterred by all the failed attempts at premature termination to date Doctor Death #7 indicates "Currently an R1, however given medical condition --R3 after discussion"
8) UAH June 12 to July 23, 2014 Hospitalization --Rebecca goes to the UAH where doctors refuse to change the R3 status. Who knows why? An ethicist writes a consultation report. Before this moment no one had paid attention to my query of why they were trying to prematurely terminate a severely handicapped woman whom they had determined lacked the ability to make her own medical decisions --nor had they listened to my dad either. The family's input was treated as frivolous --as if we were asking for a dumb thing rather than the life of a human being. Nope all the doctors had decided until the ethicist asked them the simple question of why does a drug addict get resuscitation but not Rebecca? Even the ethicist was willing to listen to the dumb doctors about his opinion. What the heck?
Does no one understand that this is a matter of life and death where a severely handicapped woman cannot do her own compliance program with a BIPAP machine without a compliance program and helps?
Apparently not.
From 2010 to 2015 the system was willing that Rebecca end up in emergency and hospital for repeated DNR experiences because the system cannot get its act together as it should have got its act together.
Why doesn't the system get its act together?
Well it is like this.
Staff and extra work costs money.
One side tells me there isn't enough money (Good Samaritan Society) and that they are losing money on the respiratory program.
The other side (Alberta Health and AHS) says that patient care based funding provides the right amount of cash depending on the problems of the patient.
In between is a severely handicapped woman who cannot tell me what is going on. Staff told us there were compliance problems but not that she was getting minutes of time on the BIPAP. How would we know that she did not get the time she needed on the machine? We thought it was the drugs that were the problem.
It was only when I got the data card download from a new machine in 2014 that I found the problems. Staff did not turn on the machine for two separate incidents. She did not have time on the machine because there was no compliance program set up. She could not be compliant because the drugs weren't sometimes in the therapeutic range. She was dirty, peeing everywhere, falling down, incoherent and out of control because nearly all the time at the facility she had blood gas levels that were elevated. Imagine that folks. My sister was left to survive while all around me folks were telling me that they could not FORCE CARE on her.
Now I am going to court. I am going to speak about the failures of Alberta Health. I am going to speak about the refusal of AHS to do their oversight jobs until she had her second adverse event. I am going to speak about how everyone blamed her for what she could not help. Imagine if you are in this situation. And now look at her today.
She is compliant.
She has not been in the hospital or emergency for the entire time at Villa Marguerite.
She is clean.
If she pees, there are people who know how to help her to get to clean.
If there is a problem my sister Sue writes and phones to get her the help she needs.
What happened here?
What is the difference?
I believe it is the removal of care plans from the continuing care business.
The Villa Marguerite is staffed by AHS staff. They decide the care plans. The care plans are executed by the Villa Marguerite staff.
It may be that such a solution is required for the care of residents in the continuing care system. If you are going to keep continuing care in the private sector, don't put the care plans in the hands of the private business. Get the public sector to do the care plans and then get the private sector to execute the plans. But if you are doing this why don't you have the care entirely in the public sector? Too much money spent on staff liabilities --salaries, pension plans and such like.
It's the way it is.
My sister was under threat of a Do Not Resuscitate Order from 2010 to 2015. It maybe that she is always going to be vulnerable. It may be that the system has devolved completely into survival of the fittest mode.
It may be that the egg of confidence in the system is permanently cracked and will never be put together again.
But at least my family knows it is cracked.

And now you do as well.

ZAZ - "Si jamais j'oublie" [Official Video]

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