Sunday, April 30, 2017

Julie Ali Laura Funk gets it far more than Mr. Trudeau does. The problems in the continuing care system in Alberta are not being addressed. Underfunding results in poor staff:resident ratios as well as poorly trained staff. If we raise concerns we are told that we can always hire extra private help. But then what about other residents in the same facility? And why should we be paying for extra staff when we are already paying for accommodation charges? Aren't we also paying for the health care costs through our taxes? I was told that there was no complex care in Alberta and my question is why not? Why does the system consider my requests for individualised care for my handicapped sister with disabilities to be impossible because such an "idealised" system of care is not achievable? Families are not satisfied with the continuing care system and are speaking out. We get retribution for such speech. Currently in Grande Prairie yet another family is finding out that the system is so afraid of family advocates that they will ban them. https://www.facebook.com/stephen.tucker.334 Stephen Tucker with Tammilee Rideout-Tucker and Juanita James. April 27 at 6:36am · The home banned my dad to be allowed on the property for a full year as we know it now. All my dad did was protect mom day in and day out of the non care she was missing at the home of missed food feedings catheter plugs for nine hrs and the list goes on and on with plenty of pictures and documents to back it up . ***** The stress of having family members in care is compounded by fears of retribution for advocating for them. Its a lose-lose situation for families and no change has happened with the NDP folks in government. The poor quality of care provided at some facilities is indeed an ongoing source of stress.« less

Instead of this useless day of recognition Mr. Trudeau could do real work by:
1) Suggesting to Alberta Health that they amend the Trespass to Premises legislation to include an appeal
2) Suggesting to Alberta Health that there be visitation rights enshrined no matter what happens in terms of retribtion?
3) Directing federal health care dollars at the continuing care system and not just the home care solution?
4) Asking for accountability for our taxpayer dollars of the health departments in the area of continuing care?
5) Asking for protections for advocates who face retribution such as lawsuits?
6) Providing federal funds to advocates who are sued like Ruth Adria of the Elder Advocates of Alberta society?


LikeShow more reactions
Comment
Comments
http://www.cbc.ca/radio/the180/the-oilers-are-canada-s-hockey-team-caregivers-need-more-than-just-recognition-and-the-power-of-dog-poop-1.4087566/caregivers-need-more-than-a-national-day-of-recognition-1.4087700



Sunday April 30, 2017

Caregivers need more than a national day of recognition




















































  • Caregivers for people with conditions like Alzheimer's and dementia are often overwhelmed.
    Caregivers for people with conditions like Alzheimer's and dementia are often overwhelmed. (iStock)

    MORE STORIES FROM THIS EPISODE

    One in four people in Canada care for a loved one, friend or neighbour.  
    And earlier this month the Prime Minister recognized the millions of Canadian caregivers who help support someone with in their lives, by declaring April 4th to be National Carers Day.
    But Laura Funk, an Associate Professor in sociology who studies aging and health care, says carers in this country need more than a day of recognition.  
    Funk says one of the most common issues she hears from caregivers is the struggle to access formal care services for the person they are supporting — and she says that issue encompasses a complex and multifaceted problem.
    The quality and quantity of existing formal services is actually, I believe, a key determinant of carer stress. And the more integrated and transparent a system you have — the more coordination you have within that system — it becomes easier for caregivers to navigate.  And that's not currently the case with our existing healthcare systems — they are highly complicated and difficult to access.- Laura Funk
    As a result of the critical role caregivers play, Funk says the health care systems have come to rely heavily on them.
    "I would emphasize though, that even when these formal services are provided, it's not like the carer steps back and does nothing. In some ways they can step back and be the daughter instead of the caregiver, but they continue to be highly, highly involved in providing different kinds of support ...so it's not like they do nothing when formal services are in place."

    Canada's aging population is real, but to Funk, it's not a reason to throw up our hands and say we can't do anything.  In fact, she says, there is a lot of good research to show that integrating and coordinating health care can be both more cost-effective and helpful to older adults and their families.
    • Julie Ali
    Laura Funk gets it far more than Mr. Trudeau does. The problems in the continuing care system in Alberta are not being addressed. Underfunding results in poor staff:resident ratios as well as poorly trained staff.

    If we raise concerns we are told that we can always hire extra private help. But then what about other residents in the same facility? And why should we be paying for extra staff when we are already paying for accommodation charges? Aren't we also paying for the health care costs through our taxes?

    I was told that there was no complex care in Alberta and my question is why not? Why does the system consider my requests for individualised care for my handicapped sister with disabilities to be impossible because such an "idealised" system of care is not achievable?

    Families are not satisfied with the continuing care system and are speaking out. We get retribution for such speech. Currently in Grande Prairie yet another family is finding out that the system is so afraid of family advocates that they will ban them.

    https://www.facebook.com/stephen.tucker.334
    Stephen Tucker with Tammilee Rideout-Tucker and Juanita James.
    April 27 at 6:36am ·

    The home banned my dad to be allowed on the property for a full year as we know it now. All my dad did was protect mom day in and day out of the non care she was missing at the home of missed food feedings catheter plugs for nine hrs and the list goes on and on with plenty of pictures and documents to back it up .
     *****
    The stress of having family members in care is compounded by fears of retribution for advocating for them. Its a lose-lose situation for families and no change has happened with the NDP folks in government.

    The poor quality of care provided at some facilities is indeed an ongoing source of stress.« less
    • Just now
    Grancy Bain
    • Grancy Bain
    My husband has a deteriorating and chronic lung condition. He is on O2 all the time. We can go out with his portable tanks but it is a struggle. He is mentally capable but needs psychological support as do I. It is very stress full. My mother just died at 102 so that has been stressful as well. I need counselling or moral support. Our kids are great but too far away to help much. Even getting doctors appointments is a challenge. Emergency is out of the question. Too many bugs to pick up while a five hour wait.« less


    Time for more than a day of recognition.
    Time for visitation rights and residential tenancies rights for residents and protections for advocates and carers.
    We need action.
    LikeShow more reactions
    Comment

    No comments:

    Post a Comment