Friday, March 31, 2017

will you speak or stay silent?


#GoodSamaritanSocietyLawsuit--In Alberta retribution is used to silence families. Lawsuits are the ultimate form of retribution.
When you get to the crossroads you have to decide--what you will do. Will you do the retribution business or will you speak and act for change in the continuing care system.
I decided to work for change.
The Good Samaritan Society construed my efforts as retribution.
The court system will decide the case.
I am not a powerful person.
I am a stay at home mummy.
But I believe that if ordinary citizens like mums and dads risk lawsuits to speak for the most defenceless citizens in the continuing care system the government of Alberta will be forced to do the work of change.
Without out us there is no change.
Government has entrenched bureaucrats and politicians interested only in re-election.
We -ordinary citizens are only interested in the health and safety of our family members in the continuing care system.
It's difficult to decide what to do.
Everyone has to decide by themselves.
And once the decision is made to change the world--we become the light for others in the darkness.

well I had a nap and then I got up again to do the work the review of papers until the day ends the work keeps me going I slip out ...
READINGCHILDRENSBOOKS.BLOGSPOT.COM

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well I had a nap
and then I got up again
to do the work
the review of papers
until the day ends


the work keeps me going
I slip out of one event to the next
I wonder to myself 
what the heck happened here?
is this the system of the care of our seniors?


the work is so mysterious
who is in charge? is it anyone?
and then the sad realisation
that we are here for the ending
that's not respectful or correct for our beloveds

folks are burnt out
and the staff can't do it all
we are here for each other
but this is just a dream
I washed my hands of the entire mess

but then I returned
to face the troubles
which is what this is
I can't tell you what to do
when you arrive at the crossroads


all I can tell you
is that you can rise up
from the floor when you fall
and you can become tough
because it is all up to you

no one else will come to your aid
you must decide for yourself
will you speak or stay silent?
which decision has the greater cost?
and which act will set you alive?


I take my lawsuit
and I hold it like a baby
I tell myself
I will grow this child up
and like a good mother I will put the child out

into the world
when you see my child all grown up
maybe you too will sing like I do
maybe this lawsuit all grown up
will help you as well





http://edmontonjournal.com/news/politics/alberta-health-services-directed-to-create-policy-for-banned-visitors

Alberta Health Services directed to create policy for banned visitors

Published on: November 17, 2015 | Last Updated: November 17, 2015 9:12 PM MDT
0:00
/
0:45
Health minister on patient bans
Alberta Health Minister Sarah Hoffman says she has directed Alberta Health Services to create a province-wide policy and appeal process for people banned from visiting their family members in care facilities. Video by Mariam Ibrahim
Albertans who have been banned from visiting their family members at provincial care facilities will soon have recourse, the province’s health minister says.
Health Minister Sarah Hoffman said Tuesday she has directed Alberta Health Services to create a provincewide policy outlining when people can be banned from facilities. She said the policy will include an appeal process and is expected to be in place by the end of March 2016.
“My expectation is that we develop a policy to ensure consistent practice throughout AHS facilities that really focuses on making sure that patients are safe,” Hoffman said.
The policy would apply to any operators contracted by the provincial health authority to provide care, including Covenant Health.
Hoffman said she was motivated by stories of Albertans who have been prevented from visiting family. Over the past few years, Albertans across the province have spoken out about what they say is fear of retribution from some facilities after advocating for better care.
Currently, anyone who feels they were unjustly barred from a loved one’s facility faces years of complicated appeals through Alberta Health Services Patient Relations, a process that, at best, ends with a provincial Ombudsman recommendation. But the final decision to grant access rests with the facility manager.
“Our intention is to make sure that patients are safe, staff are treated with respect and that family members have opportunities to support their family,” Hoffman said.
She said she wants to ensure transparency about why decisions are made whenever possible.
David O’Brien, vice-president of seniors health for Alberta Health Services, said he agrees a consistent policy is needed.
“I think what we have now is a fair degree of legacy policies that had been in place from previous regional health authorities, and while each one of them might be good on its own, AHS is a single organization provincially and we need to have consistency in the way our policies and processes are implemented,” he said.
Shauna McHarg, who last year cast a spotlight on the issue after she was banned by Covenant Health from visiting her parents at the Edmonton General Continuing Care Centre, was introduced in the legislature chamber by Liberal interim leader David Swann on Monday and later had the chance to speak to the health minister about her concerns.
“I think it’s wonderful that she is starting the process,” McHarg said. “She’s taking these wrongdoings very seriously and I believe she is going to ensure correction.”
mibrahim@edmontonjournal.com
http://edmontonjournal.com/news/politics/alberta-health-services-directed-to-create-policy-for-banned-visitors

Jerry Macdonald
Remember, though, that AHS, Covenant, and the art we agencies are also Employers, and have an obligation under the OH&S Code to maintain a safe workplace. However, in cases where family members are barred from facilities for legitimate reasons, privacy laws prevent them from disclosing those reasons; and yet,those who are barred are free to run to the media and give one-sided accounts.
LikeReply3Nov 18, 2015 6:50am
Julie Ali ·
Our stories are not one sided. But of course most citizens will never know our stories with the retribution faced by families up to and including lawsuits.
LikeReplyMar 9, 2017 7:43pm
Patsy Roselle
if a facility tries to prevent me from seeing a loved one who is in a long term care facility, that loved one will be moved out. Facilities don't usually ban family members unless that family member has displayed very bad behavior.
However, if the family member is complaining about care, that's another whole new ball game.
LikeReply1Nov 18, 2015 10:12am
Damaris Spindler ·
hmm. I wonder just how badly theses people behaved to be barred from a facility? Complaints about care, or abusive and disruptive behaviors?
LikeReply1Nov 18, 2015 6:24am
Nancy A Van Valkenburgh ·
what Alberta! You are seriously hurting your patients! THEY NEED THIER LOVED ONES....to who made this absurd rule...one day it could happen to you!
Marla Creelman Kopkie ·
Alberta and all its rules...... seriously.
LikeReply1Nov 17, 2015 10:44pm





Julie Ali shared a link.
edmontonjournal.com
Without legislative changes protecting the rights of patients/residents and advocates we will have retribution acts continue in Alberta. From the comments of the minister you would think we have change in Alberta. Not so. We need real change with teeth. Sarah Hoffman offers us a teethless solution that jaws on and on about the recourse we do not have. Why not amend the Trespass to Premises legislation to ensure we have an appeal process independent of AHS, Covenant Health, Alberta Health and continuing care industry folks? I guess they don't want independent. Why not enshrine rights into legislation? Well they don't want us to have rights do they? Just the appearance of rights. I guess in another 22 years we might get to the place where human rights of disabled and elderly citizens are not infringed on by archaic practices of the system which uses the Trespass to Premises legislation to cover up failures in the system itself. The public thinks that advocates are the problem. Really? Read my comment folks and get educated:
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Jerry Macdonald
Remember, though, that AHS, Covenant, and the art we agencies are also Employers, and have an obligation under the OH&S Code to maintain a safe workplace. However, in cases where family members are barred from facilities for legitimate reasons, privacy laws prevent them from disclosing those reasons; and yet,those who are barred are free to run to the media and give one-sided accounts.
Like · Reply · 3 · Nov 18, 2015 6:50am

Julie Ali · University of Alberta
It is interesting that you say that the banned family members are providing one sided accounts of the care concerns that they have raised repeatedly with the health authorities and the government of Alberta.

Where else would we raise our issues when they aren't being dealt with by the continuing care organization's front line staff / managers / board, AHS and Covenant Health administrators and the various health ministers we have written to?

Have you actually been in the situations described by Shauna McHarg and other families? I can tell you from my family’s experience that banning happens and other retribution acts. We don't often hear about them because of legal intimidation by continuing care organizations as well as fertile efforts by the health authorities and the government of Alberta to provide sanitized reports of abuse and death in continuing care.

Believe me, families do not want to go to the media. We have to talk about what happened to our family members who were abused and this is an invasion of their privacy. We have to also keep going for years to speak about problems that repeat. Why should handicapped citizens like my sister have to put up with repeated adverse events just because the system is not intelligent and refuses to learn from repeated adverse events that are identical?

Even if the health authorities are obliged to keep their employees safe, as advocates we understand this and school ourselves to be responsible in our contact with authorities.
Believe me, we fully understand that if we become "adversarial" in any shape or form we are not effective advocates and as such have learned to become superhumanly restrained about abuse and near death experiences. We are expected to be saintly in our conduct while there are repeated identical failures in the system that the PPIC folks write up as legitimate abuse and yet what is done about these verified abuse cases? Good question. What is done about non-compliant organizations other than sending in AHS staff at our expense to ensure that staff training is done and that all non-compliances are fixed? What about the oversight after one mess is cleaned up? Who ensures that the system keeps working when current auditing practices fail to find gross non-compliances in the system? I would say that oversight in Alberta isn't done effectively or why else are families having to be the ongoing watchdogs for the system?

In my handicapped sister's case I am going to court to defend my public comments about the care she received. Here are some of the "one sided accounts" that you speak of:


My handicapped sister has been moved out of long term care by Covenant Health and AHS. She is now at Villa Marguerite which provides a lower level of care -SL4 versus long term care. She has been stable at the new facility since February 2016.
Families do not go to the media to complain about problems in the system that can result in banning, marginalization and legal retribution. We are speaking about real problems in the system that are not dealt with by continuing care organizations, whitewashed by the folks at the PPIC office and not dealt with effectively by the government of Alberta. Why would we stay silent when these our beloved family members? We want action. We want an amendment to the Trespass to Premises legislation that allows for an external to AHS appeal process. We want to be able to advocate for our vulnerable family members without the retribution problems. We want resolution not retribution. These are our family members and they are not dead yet. They deserve safe, reasonable care; as handicapped and frail citizens they cannot advocate for themselves. We must do this work for them despite the retribution we face.
Like · Reply · Aug 31, 2016 8:36am

Patsy Roselle
if a facility tries to prevent me from seeing a loved one who is in a long term care facility, that loved one will be moved out. Facilities don't usually ban family members unless that family member has displayed very bad behavior.
However, if the family member is complaining about care, that's another whole new ball game.
Like · Reply · 1 · Nov 18, 2015 10:12am

Damaris Spindler · Works at Sacred Heart Hospital
hmm. I wonder just how badly theses people behaved to be barred from a facility? Complaints about care, or abusive and disruptive behaviors?
Like · Reply · 1 · Nov 18, 2015 6:24am

Nancy A Van Valkenburgh · Medical
what Alberta! You are seriously hurting your patients! THEY NEED THIER LOVED ONES....to who made this absurd rule...one day it could happen to you!
Like · Reply · Nov 18, 2015 6:05am

Marla Creelman Kopkie · Owner at Maple Leaf Hair Co.
Alberta and all its rules...... seriously.
Like · Reply · 1 · Nov 17, 2015 10:44pm


http://www.pialberta.org/woman_evicted_from_care_facility_due_to_family_publicly_raising_concerns

Woman Evicted from Care Facility Due to Family Publicly Raising Concerns

Media releases | March 24, 2015
EDMONTON—A woman was evicted from the care centre she has been living in for five years and transferred to hospital without the family’s prior knowledge or consent because a family member was publicly questioning the quality of care her sister was getting at the facility.
On February 19th the Good Samaritan Millwoods Care Centre left a voice mail for Sue Ali that her sister Rebecca had been sent via ambulance to the Grey Nuns Hospital and that her other sister Julie was banned from the facility.
The family has asked Alberta Health Services and the Minister to intervene as Rebecca wants to go back to the facility she has lived in for five years, and it is only one of two facilities in Edmonton that have the specialization to deal with her respiratory issues.
“We are so shocked and angry about how our sister has been treated and have been waiting weeks without any word on why AHS allowed this transfer or why she can’t go back to the care facility,” said Sue Ali.  “A call from the Health Minister could quickly and fairly resolve the matter and free up a much-needed acute care bed that costs $1200 a day. Inaction has cost the public something in the order of $40,000 to date.”
Public Interest Alberta has raised similar concerns with the Ministry of Health, the Health Advocate’s Office, and AHS about the lack of due process for many families who have been banned or threatened to be banned for raising concerns about the quality of care for their loved ones. To date, there has been no commitment by the Alberta government to create an independent process to allow families to address this abuse of power from facilities.
“The government needs to step in and make sure that there is a proper independent process that allows patients and their families to stand up to this abuse of power,” says Bill Moore-Kilgannon, Executive Director of Public Interest Alberta. “As long as the Alberta government allows institutions to evict patients and ban family members, many people will be afraid to advocate for quality care for their loved ones.”
-30-

In the afternoon, after eating two chocolate oatmeal cookies and feeling sleepy I talk to older boy. He has made a practice of calling me once in a while since he knows I am afraid of the entire business of an apprenticeship in the field.
Now that he is into the program I am getting used to the idea of being out in the field but of course it is a new thing for me. Most of my life has been spent in a library at some university exploring books. Knowledge. That kind of stuff.
Then being a worker for a bit.
Then the boys.
The progression to stay at home motherhood has been very rewarding. I can say that the boys have been the best part of existence.
Older boy is doing well. Tired perhaps with the work but still pretty good. Younger boy will hopefully find a summer job. He is stuck to his computer after skipping school yet again.
Usually when I went to school I skipped classes as well so maybe this skipping business is hereditary.
I could fall asleep right now. The churn of the affidavit stuff is like a soup spoon mixing a broth. Never done an affidavit? Mine is sooooo long. And I still have to add to it with the new information that I am getting from the doctors who will hand over their files. I have also got data card downloads.
I am covered in paper everywhere.
It's pretty interesting.
And next week will be a great educational experience.
#
Date
Description
1
May 21, 1996
Hansard Record - Govt of AB
May 21, 1996
February 25, 1996 death - Jennifer Fortier from detached ventilator
2
Aug 15, 1996
Hansard Record - Govt of AB
August 15, 1996
November 24,1995 death - George Clark from detached ventilator
3
May 21, 1996
Hansard Record - Govt of AB
May 21, 1996
Jennifer Fortier's fatality report
Died 1996, Feb 25 - detached ventilator/suffocation
4
Aug 21, 1997
Fatality Inquiry Report
August 21, 1997
February 25, 1996 death - Jennifer Fortier from detached ventilator
5
Dec 13, 2002
News article Edmonton Journal
December 16, 2002
December 13, 2002 death of 72 year man from detached ventilator
6
Aug 30, 2006
Hansard Record - Govt of AB
August 30, 2006
Continuing Care Costs
7
May 7, 2013
Hansard Record
May 7, 2013
Care for Dementia Patients William Buckley
8
April 9, 2013
Fatality Inquiry Report
July 18, 2010 death of William Evan Buckley
9
May 14, 2013
Newsletter
CANADIAN OVER 50s HOUSING WEEKLY NEWS • MAY 14, 2013
10
January 2015
Alberta Health CCHSS Audit
11
Oct 9, 2015
Investigation file Protection for Persons in Care (PPC) File # 8523
Particular pages
12
Oct 2, 2015
Director’s Decision Protection for Persons in Care (PPC) File # 8523 Allegations #8523.001 and #8523.002
13
2010-2015
Care and Medical Records Good Samaritan Millwoods
14
2010-2016
Medical Records Grey Nuns Hospital
15
2010-2016
Medical Records UAH/ Royal Alexandra Hospital
16
2010-2016
Emergency/ Admission / Discharge Documents and Consultant reports
17
2010-2016
ABG results and summary
18
2014-2015
Letters/Faxes E-mails from VitalAire
compliance monitoring
19
2010-2015
Downloads Medigas and Vitalaire Compliance Information (Good Samaritan Extended Care at Millwoods)
20
2015-2016
Downloads Medigas and VitalAire Compliance Information (Grey Nuns Hospital and Villa Marguerite)
21
2013
BIPAP AVAPS user manual
22
2016
VitalAire Quick set up of your BIPAP Device
23
2016
VitalAire Successful BIPAP Treatment
24
Jan 22, 2015
Respiratory Information Sheet
BIPAP AVAPS Respironic ownership - ADL
Serial Number C13030482EF74
25
Oct 13, 2015
E-mail to B V
Re BIPAP AVAPS Respironic ownership (ADL)
26
2005-2015
Respiratory Letters - Dr Damant and Government of Alberta
27
2010-2015
Care plans and Resident Care Conferences
Good Samaritan MW
28
2010-2016
Cognitive and Capacity Testing
For R. Ali
29
May 26, 2010
Personal Directive
30
November 22, 2015
Supported Decision Making Authorization Form
31
2010-2016
End of life orders/ DNR orders/Goals of Care designations
32
2010-2016
Alberta Continuing Care Info System Assessments (ACCIS)
33
2015-2016
Eviction Correspondence
34
2010-2016
E-mails and Letters
35
Feb 19, 2015
Recording of first banning Voice Recording of Banning
36
Sept 3, 2015
Voice Recording of second banning
https://drive
37
2010-2014
The Good Samaritan Society SAP Manual Worksheet MWC004 -MILLWOODS RESPIRATORY
38
2010-2014
The Good Samaritan Society Vendor Receipt Report-Detail
39
2010-2014
The Good Samaritan Society
Supply Area Profile Valuation
40
2010-2014
The Good Samaritan Society Department Expense Detail Report by Category
41
2005-2012
The Good Samaritan Society Process Manual with revisions
42
2009-2014
The Good Samaritan Society Non-consolidated Financial Statements
43
May 22, 2007
Newspaper article
“Changes promised after Mountain View protest”
44
December 21, 2007
Newspaper article
“Concerns at Mountain View Centre raised again”
45
March 19, 2012
Newspaper article
“Confusion over long-term care”
46
April 2, 2012
Newspaper article
“AHS responds to long term care concerns”
47
November 19, 2012
Newspaper article
“The push for a long-term care facility”
48
April 30, 2013
Newspaper article
“Good Sam needs changes: Long Term Care Working Group”
49
May 13, 2013
Newspaper article
“Good Sam fatality report causes worry in Hinton”
50
May 13, 2013
Newspaper article
“Doubt surrounds seniors care facility”
51
August 29, 2013
Newspaper article
“Seniors issue a community problem”
52
October 8, 2013
Newspaper article
“Care facilities deemed insufficient for Hinton’s needs by working group”
53
October 12, 2013
Newspaper article
“Hinton’s seniors need more support, says working group”
54
October 21, 2013
Newspaper article
“Hinton’s elders deserve better”
55
December 3, 2014
Newspaper article
“Linden View care concerns voiced”
56
December 10, 2014
Newspaper article
“Bikman brings Linden View issues to seniors minister”
57
December 10, 2014
Newspaper article
“Linden View debate needs discussion”
58
December 18, 2014
Newspaper article
“Changes being made at Linden View”
59
December 23, 2014
Newspaper article
“Flip flop by Linden View management”
60
May 19, 2005
Disciplining a Nursing Home Senior – May 19, 2005
61
March 24, 2015
Presentation to Legislature
62
March 24, 2015
Online News Article and Soundwave Document
Public Interest Alberta (PIA)
63
June 2015
Continuing Care Resolution Team Feedback Summary
Appendix B -page 15
Alberta Health Services
Continuing Care Resolution Team
Final Report
64
June 24, 2015
Hansard
Presentation to Legislature
65
June 2015
TV broadcast - Alberta Primetime
2 Part Video
66
September 9, 2015
Newspaper article - Edmonton Sun
67
September 9, 2015
Newspaper article
“People banned from visiting family in hospital demand provincial help.”
68
September 10, 2015
Newspaper article
“Banned hospital visitors fight back.”
69
September 10, 2015
Newspaper article
“Family members speak out after being banned from care facility.”
70
October 2015
Online Survey Report
Health Quality Council of Alberta (HQCA) Survey
Long Term Care Family Experience pages
71
October 2015
Online Survey Report
HQCA LTC Family Experience
2014-15 Survey Report - Provincial Results
72
October 28, 2015
Newspaper article
“Ratings released for long-term care facilities”
73
October 28, 2015
Newspaper article
“City care centre ranks last
Good Samaritan has lowest ranking among long-term facilities in Alberta”
74
October 28, 2015
Newspaper article
“Health watchdog ranks Alberta long-term care centres.”
75
October 28, 2015
Online Newspaper article
“Staffing is key issue, says Health Quality Council of Alberta survey”
76
October 29, 2015
Newspaper article
“Watchdog hands out report cards for long-term care .”
77
November 5, 2015
Newspaper - Letter to Editor
” Experienced staff crucial to long-term care”
78
November 17, 2015
Online Newspaper article
“Government directs AHS to develop policy on banning visitors at long-term care facilities”
79
November 18, 2015
Online Newspaper article
“Alberta Health Services Ordered To Create Clear Policy For Banning Visitors At Long-Term Care Homes”
80
March 26, 2014
Health Quality Council of Alberta report
“Review of Alberta Health Services’
Continuing Care Wait List: First Available Appropriate Living Option Policy - March 26, 2014”
81
April 30, 2014
Health Quality Council of Alberta report
Review of Quality Assurance in Continuing Care Health Services in Alberta - April 30, 2014
82
June 4, 2014
Newspaper article
“Health watchdog calls for better oversight of care facilities”
83
June 5, 2014
Online Press Release
“HQCA releases two reports that address continuing care in Alberta”
84
June 5, 2014
Online Newspaper article
“Continuing care in Alberta will be better, promises province
Promise follows release of two reports critical of Alberta health policies”
85
June 5, 2014
Online Newspaper article -
“Confusion in Alberta continuing care: report”
86
2014-2015
Photographs and video
https://drive.
87
Blog posts limited to affidavit
****
And the affidavit has to be added to still.
I will have to add to it as I get the data from the doctors.
One day I will put all this information into a book for other families who need help navigating the continuing care system in Alberta.
I will do a book that says that the system is not helpful for handicapped citizens or those without insight but if you are proactive and are involved in the care of your handicapped family member you may have better outcomes.
Here is the beginning of this book:
Woman Evicted from Care Facility Due to Family Publicly Raising Concerns
Media releases | March 24, 2015
EDMONTON—A woman was evicted from the care centre she has been living in for five years and transferred to hospital without the family’s prior knowledge or consent because a family member was publicly questioning the quality of care her sister was getting at the facility.
On February 19th the Good Samaritan Millwoods Care Centre left a voice mail for Sue Ali that her sister Rebecca had been sent via ambulance to the Grey Nuns Hospital and that her other sister Julie was banned from the facility.
The family has asked Alberta Health Services and the Minister to intervene as Rebecca wants to go back to the facility she has lived in for five years, and it is only one of two facilities in Edmonton that have the specialization to deal with her respiratory issues.
“We are so shocked and angry about how our sister has been treated and have been waiting weeks without any word on why AHS allowed this transfer or why she can’t go back to the care facility,” said Sue Ali. “A call from the Health Minister could quickly and fairly resolve the matter and free up a much-needed acute care bed that costs $1200 a day. Inaction has cost the public something in the order of $40,000 to date.”
Public Interest Alberta has raised similar concerns with the Ministry of Health, the Health Advocate’s Office, and AHS about the lack of due process for many families who have been banned or threatened to be banned for raising concerns about the quality of care for their loved ones. To date, there has been no commitment by the Alberta government to create an independent process to allow families to address this abuse of power from facilities.
“The government needs to step in and make sure that there is a proper independent process that allows patients and their families to stand up to this abuse of power,” says Bill Moore-Kilgannon, Executive Director of Public Interest Alberta. “As long as the Alberta government allows institutions to evict patients and ban family members, many people will be afraid to advocate for quality care for their loved ones.”
-30-
Read the eviction letters from Good Samaritan Society


Image may contain: one or more people and text


Julie Ali
#GoodSamaritanSocietyLawsuit--An affidavit is a listing of all the information in your possession that is pertinent to the case and with which you will defend yourself when you are sued.
My affidavit is incomplete despite it's length because the government of Alberta, AHS and the Good Samaritan Society have not given me these pieces of information:
1) The Alberta Health Quality Review of the Good Samaritan Extended Care at Millwoods done October 2014
2) The AHS Quality Review of 2014
3) The Good Samaritan Society Consultant report of the respiratory services at the Good Samaritan Extended care at Millwoods done in 2014
4) Any other audits, complaints and PPIC reports for Good Samaritan Society facilities in Alberta and BC--these are critical care violations that are reported in Ontario on a public website but never see the light of day in Alberta because it is all about the partners in care covering up each others' exposed behinds.
5) Medical files from doctors who are not giving me the files in a timely or complete way or both
6) Datacard downloads for 2016 and 2017 ; I am waiting for VitalAire to generate some of these records so I can add them to the affidavit; I asked for them a while ago but they are still outstanding
7) Any other information that comes up before the court appearance.
Right now I am in a sea of paper and I only leave the writing room to eat or go to the bathroom. It's very neat.




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