Sunday, March 19, 2017

I would suggest the folks at the health authorities inform doctors of the rights of handicapped citizens using common sense language of the sort I will use here--Don't do the premature termination junk on handicapped citizens especially if they have family that will yap to the media if their family member is denied services of the life saving sort. I would imagine that such media exposure would help the health authorities protect these handicapped citizens even if they don't have family wishing to stand up for them. After all, this is the right thing to do isn't it? Such junk. The "patient wishes" and "is competent to make decisions". Then about the family; a nurse calls to tell the staff we are fine with no intubation; no CPR. But then we come to pick up the BIPAP to save her life. What the heck? So isn't it kind of odd that we want to have premature termination of Rebecca and are still PICKING UP THE BIPAP TO KEEP HER ALIVE??? And why would we take her to the UAH on November 6, 2010 straight after she was dumped out by the Grey Nuns Hospital on November 6, 2010 if we were bent on letting her die? I don't know. The system is so odd.


Julie Ali feeling happy.
2 mins
Since younger boy's computer fried we have to figure out a new solution.
The entire weekend was spent troubleshooting. Tomorrow we will go to Memory Express. It may be the power supply that cost over $400 that is defunct. We will find out tomorrow since the store is now closed.
I am still in 2010 trying to leap frog from one visit to the emergency to the next wondering WHAT THE HECK?
Ten million pieces of paper lie around me. It is boiling in the writing room as the geraniums make more and more leaves and add to the worm burden of flowers. Really I used to think they were going to die but they are now blooming so maybe neglect is the way to plant success. My amaryllis bulb has made a baby and I have left her to her business.
My head hurts from reading of the same events repeating over and over again like a roller coaster ride. Surely there would be a change in this monotony I asked myself over and over again as I read the same sad litany of events leading to hospitalizations, emergency visits and visits to Medicentres? But nope.
In contrast in 2016 and 2017 at the Villa Marguerite we had two events. One was in 2016 where I had to get her a chest Xray, she had antibiotics and got better at the Villa.
The second event is this GI outbreak which can't be helped.
She hopefully is better by next week as I have to restart her brain stimulation via the art therapy program. I figure lots of painting will regenerate her brain.
Preparing for a lawsuit is very time consuming. I also have to be getting lots of sleep as my mind is not as young as it once was before having the boys. Years of the boys jumping off playground equipment, running around into traffic and similar events have left me shattered so that my brain holds only tiny sips of information.
Well enough of this. I will go back to November 2010 where the Grey Nuns Hospital doctors have told the nurse at the Good Samaritan Extended Care at Millwoods the good news that Rebecca and her family want no intubation and no resuscitation despite everything in the records.
 I will go read about the doctors consulting each other and saying yup, she's competent with a blood gas that was fairly high when dad takes her to the UAH after they dump her out of the Grey Nuns Hospital. All the doctors yap at the Grey Nuns Hospital that she is NOT a candidate for admission but luckily the doctors at the UAH do find her a candidate for admission and take the lost sheep in.
Wonder why the folks at Alberta Health aren't concerned about the unilateral decisions by the doctors at the Grey Nuns Hospital with reference to these sorts of decisions? Of course the doctors appear to have covered each others' butts quite well by telling the world that they were only listening to the request of an incompetent patient but thankfully the ethicist in 2014 finds their decision a bit troubling.
Heck I find their decision even more than troubling. I find it bizarre. Why on earth would any physician who has the data before her of the cognitive difficulties of my sister assume she could make a decision for no intubation when her CO2 levels were sky high? I doubt the molasses and cream decision of this group of Grey Nuns Hospital would stand up in a court of law especially considering this is a severely handicapped woman without insight.It would be hard for these doctors to explain to a judge how they were respecting the wishes of a woman in such a poor respiratory state when the personal directive made when she was not in the poor respiratory state indicates full resuscitation. But there you go. Maybe other handicapped patients in this situation don't have advocates who resist such dumb decisions and so doctors get away with poor professional decision making of this sort?
Who knows? But really Covenant Health and AHS need to look at these problems because the handicapped citizen is a sitting duck when doctors are out hunting geese.
I would suggest the folks at the health authorities inform doctors of the rights of handicapped citizens using common sense language of the sort I will use here--Don't do the premature termination junk on handicapped citizens especially if they have family that will yap to the media if their family member is denied services of the life saving sort.
I would imagine that such media exposure would help the health authorities protect these handicapped citizens even if they don't have family wishing to stand up for them. After all, this is the right thing to do isn't it?
Such junk. The "patient wishes" and "is competent to make decisions". Then about the family; a nurse calls to tell the staff we are fine with no intubation; no CPR. But then we come to pick up the BIPAP to save her life. What the heck?
So isn't it kind of odd that we want to have premature termination of Rebecca and are still PICKING UP THE BIPAP TO KEEP HER ALIVE??? And why would we take her to the UAH on November 6, 2010 straight after she was dumped out by the Grey Nuns Hospital on November 6, 2010 if we were bent on letting her die? I don't know. The system is so odd.

The odd events of the history are mind boggling.
But there you go.
This is the system.

Like
Comment



#GoodSamaritanSocietyLawsuit--Reading the medical file gives me an idea of how the system operates behind the scenes.
It does not operate well especially with reference to handicapped citizens.
In the case of my handicapped sister, denial of services was unethical and wrong but apparently OK for a whole bunch of doctors at the Grey Nuns Hospital who did not do their due diligence in investigation of my sister's case. They should have got the data card downloads and asked questions but nope, they simply say that they are respecting the wishes of a cognitively impaired human being with sky high carbon dioxide levels, cover each others' butts with consults with specialists and deem her and the family agreeable to their dumb decision.
Well as you can see we were not agreeable.
Doctors need to be told either by their college or by the minister of health that such professional decisions are not acceptable.
I mean I don't think there is any point complaining to the college of Physicians and Surgeons about these doctors because you know what the college is for don't you? It is for protecting doctors. I think it is best for families to simply ask for the medical records as I have done and see what actually goes on behind closed doors.
What goes on might surprise you.
What you will find is that doctors will not go against the decisions of other doctors for the most part even if the decisions are wrong.
Most doctors will dance to the same song of no intubation, no resuscitation and no ICU and what can stop them? Nothing.
I feel this is a poor situation that requires work by the Minister of Health but so far Ms. Hoffman hasn't listened to any of us so it is doubtful this situation will change in Alberta.
Best to get the records folks.
Government is not for the people.
It's for the political parties and the public sector workers.
We just pay for everything.

LikeShow more reactions
Comment

No comments:

Post a Comment