Tuesday, October 4, 2016

I say again the story of my handicapped sister who was sentenced to death / this type of propaganda doesn't help her -----------"Road to Mercy," a one-hour documentary airing Thursday on CBC-TV, explores the ethical questions surrounding physician-aided dying through the eyes of an Edmonton man with ALS, a young Belgium woman struggling with mental illness, and their families and doctors.----

they tell us the stories of folks
who want to die
at their own discretion
and then indicate
that we should give them death by doctor


they tell us the stories of folks
who suffer from mental illness
and ask us to consider their positions
well I have and I'm here to  say that the brain says no
if you can't take the mental anguish then don't think death will make it better


they tell us the stories of folks
who feel they would be better off dead
really what is next? will we have death offered
on a platter for any old disease? will we all be given potions
at the slightest set back?  I say keep this junk out of Canada


they tell us the stories of folks
so that the boundaries will loosen
and so that the territory will be captured
well I'd like to counter with the story of my handicapped sister
that the Grey Nuns Hospital doctors were all about to expire


they tell us the stories of folks
who want death   as if this makes the situation clear to us
I'm here to say that there is already a situation of premature termination
for the severely handicapped citizens in Alberta     and now y'all want us to give this option
to those without the reasoning power to see the option is final and without merit?

they tell us the stories of folks
so that we give in and expand the pool of citizens
eligible to dive into the final pool
I say again the story of my handicapped sister who was sentenced to death
this type of propaganda doesn't help her     and the only way out is to protest against this spin

they tell us the stories of folks
who are interested in premature termination
because this is what death by doctor is     and they don't need to do this spin
because in Edmonton at the Grey Nuns Hospital   they can get the premature termination
whenever they wish    they simply have to ask for it   and the road to mercy is theirs for no effort 


http://www.theprovince.com/entertainment/documentary+road+mercy+explores+ethical+frontiers+doctorassisted/12251193/story.html


CBC documentary 'Road to Mercy' explores ethical frontiers of doctor-assisted death



Belgian Amy De Schutter poses for a photograph as she talks about the new CBC documentary "Road to Mercy," in Toronto on Monday, October 3, 2016. De Schutter was given approval to seek euthanasia at a time of her choosing, due to chronic psychological suffering that did not respond to treatment. THE CANADIAN PRESS/Nathan Denette
Belgian Amy De Schutter poses for a photograph as she talks about the new CBC documentary "Road to Mercy," in Toronto on Monday, October 3, 2016. De Schutter was given approval to seek euthanasia at a time of her choosing, due to chronic psychological suffering that did not respond to treatment. THE CANADIAN PRESS/Nathan DenettePHOTO BY 

TORONTO - Earlier this year, Canadians were given the legal right to seek a doctor-assisted death, but restrictions in the law governing who can access the act and under what circumstances have continued to fuel debate about this still-contentious issue.
"Road to Mercy," a one-hour documentary airing Thursday on CBC-TV, explores the ethical questions surrounding physician-aided dying through the eyes of an Edmonton man with ALS, a young Belgium woman struggling with mental illness, and their families and doctors.
Under federal legislation passed in June, only patients in an advanced state of irreversible decline from an incurable condition and for whom natural death is "reasonably foreseeable" can seek doctor-assisted death. Those suffering strictly from a psychiatric illness would not be eligible, nor does the law allow people diagnosed with dementia to arrange for euthanasia at a future date.
The law is already facing a constitutional challenge spearheaded by the British Columbia Civil Liberties Association, which led the four-year legal battle that resulted in last year's landmark Supreme Court of Canada ruling that struck down the ban on medically assisted dying.
"I think the documentary is coming out at the perfect time," said Nadine Pequeneza, writer-director of "Road to Mercy," a condensed version of an 83-minute production she hopes to show at film festivals.
"We are going to be faced with rewriting this legislation," she predicted, "and I'm hoping that the documentary encourages conversation that looks at these more complicated, nuanced cases that the Supreme Court has said have to be included."
Among those conversations is whether the legal landscape in Canada should be expanded to include people with "grievous and intolerable" suffering due to psychiatric illness, a criterion accepted in Belgium, the Netherlands and Switzerland, but not in the five U.S. states where medically assisted death is permitted.
That hot-button issue is examined in "Road to Mercy" through interviews with 30-year-old Amy De Schutter of Belgium, who after a long process was given approval to seek euthanasia at a time of her choosing, due to chronic psychological suffering that did not respond to treatment.
De Schutter, recently diagnosed with Asperger's syndrome after being told years earlier she had borderline personality and generalized anxiety disorders along with clinical depression, has tried to take her own life almost a dozen times since age 13.
Unlike family members and friends, De Schutter said she doesn't seem to have a "baseline" mood level.
"I never had a baseline, even when I was a kid," De Schutter, who travelled to Toronto from her home in Antwerp for the documentary's premiere, said in an interview.
"If I'm happy, I'm extremely happy. If I'm down, I'm extremely down. I just live in extremes all the time.
"And you get really tired of going up and down and up and down, because sometimes you have good days for a couple of good hours, and then something happens or sometimes it just comes unexpectedly — and boom, I'm down again.
"And you get exhausted by it."
Pequeneza believes De Schutter's story will make viewers think more deeply about assisted dying as it relates to those striving for some quality of life in the face of ongoing psychological anguish.
"(This) is what I wanted the documentary to do, because the majority of Canadians are OK with terminal illness," she said of attitudes towards aid in dying.
"But when it comes to someone like Amy — she's young, she's smart, she appears perfectly normal — as they spend more time with her and they meet her mother and they hear from her psychiatrist, then they'll have to start to appreciate that what she does have is a severe disability that she's been struggling with for more than half of her life."
"Road to Mercy" also documents John Tuckwell's struggles as his health steadily deteriorates due to the ravages of amyotrophic lateral sclerosis, an incurable neurological disorder better known as ALS or Lou Gehrig's disease.
Though in a wheelchair for the most part and unable to speak, Tuckwell is able to communicate through a computerized voice-generating device, which translates sentences he types with a finger on a keypad into audible speech.
As he loses more and more function — including the ability to bathe himself, leaving him reliant on caregivers — Tuckwell "moves the goalposts" of what he'd previously believed he could withstand before seeking help to die.
In the end, although he'd been given doctors' approval for euthanasia when his suffering became intolerable, Tuckwell succumbed to ALS in July at age 54.
"By making an application (for assisted death), he wanted it to be public and he wanted to send a message to other people like him that asking for help to die was not a shameful thing," said his sister Cathy Tuckwell, who lives in Toronto.
"Although he wasn't at a point where he wanted to push the button, or have the button pushed for him, the fact that he did have that (approval) gave him comfort."
As for De Schutter, she is working with an autism specialist to develop skills to better understand and cope with her Asperger's.
Even so, she believes the balance is still tipping towards euthanasia.
"There will not be any type of miracle that at once I will have my life spirit back again," she said of the therapy she has committed to, at least for the time-being.
"And for most of the time, if not all the time, I'm still thinking that euthanasia is the way that I will end my life and that will be the decision I will make.
"But the biggest difference, I guess, is if I go, I really want to have the feeling that I tried everything I could."
"Road to Mercy" airs on CBC's "Firsthand" and will be available for streaming at http://www.cbc.ca/firsthand/episodes/.
Follow @SherylUbelacker on Twitter.



http://notdeadyet.org/2016/06/video-the-disability-community-responds-to-me-before-you-movie.html


VIDEO: The Disability Community Responds to Me Before You movie


There’s a brand new video created by Carrie Ann Lucas celebrating protests of the movie “Me Before You” by the disability community on three continents. Carrie is on the Board of Directors of NDY and one of the leaders of Colorado NDY. Here’s how she describes the video:
The disability community responded to the disability snuff movie, Me Before You, with protests in many countries on three continents. The movie gives audiences the message that if you’re a disabled person, you’re better off dead #LiveBoldly? We already do! #MeBeforeEuthanasia
The musical backdrop for the video is by activist/songwriter/musician/singer Johnny Crescendo, singing “Not Dead Yet,” a song he wrote years ago about our community’s opposition to assisted suicide and euthanasia.  The video is captioned – and here’s info on how to access audio description:
Video described version available at YouDescribe.org at https://youdescribe.org/player.php?v=..
Caution: This video includes rapidly moving images which may induce seizures or other neurological responses in sensitive individuals.

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